Prediction And Prevention In Neurodegenerative Diseases
Dementia Researcher
12/16/19
•39m
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In this podcast we talk we talk to three panellists, to reflect on what they discovered at the ‘Prediction and Prevention in Neurodegenerative Disease Symposium’ held on the 29th November and organised by the Preventative Neurology Unit (PNU) at Queen Mary University London. Recorded on location from QMU - Dr Megan O’Hare is join by PhD students Phazha Bothongo and Isabelle Foote from Queen Mary University and Dr Harri Sivasathiaseelan from University College London. The Symposium focused on the fascinating issues around early detection and prevention of neurodegenerative diseases, and included a star studded lined-up of speakers, including Anette Schrag, Rimona Weil and Jonathan Schott from UCL. Dennis Chan, Carol Brayne and Richard Milne from the University of Cambridge and others from QMUL, Oxford and Maastricht. The PNU is a new group set up as part of the School of Medicine & Dentistry at Queen Mary University, London. Funded by Bart's Charity to try to prevent diseases that affect the nervous system, like dementia, Parkinson’s disease and multiple sclerosis. Researching people's risk of getting these diseases, and how we can spot them before there are any obvious signs. This will help us to come up with ways to try to slow down or even stop the progress of these conditions, and keep people's brains healthy for longer. You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on our website at https://www.dementiaresearcher.nihr.ac.uk/podcast-prediction-and-prevention-in-neurodegenerative-diseases Special thanks to Charles Marshal @charl_marshall for allowing us to record this podcast. Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to adam.smith@nihr.ac.uk or find us on twitter @dem_researcher _________________________
Previous Episode
Neighbourhoods, dementia & co-creation to put research into action
December 2, 2019
•43m
This week Adam Smith is at the University of Manchester to talk with a research team who over the last 5-years has been working collaboratively with people living with dementia and family carers on a study focusing on Neighbourhoods and Dementia. This weeks panel has Dr Sarah Campbell a Research Associate at the Manchester University, Professor Andrew Clark from the University of Salford and expert through experience Maria Walsh as Co-researcher and Study Adviser. In this podcast we discuss how researchers and study participants worked together to find innovative and meaningful ways to disseminate the findings from their research. Ensuring that what they learnt really was put into practice and shared with those who would benefit, and how co-production took them down the path of zines. PS you can find the zines mentioned in the podcast here: https://sites.manchester.ac.uk/neighbourhoods-and-dementia/work-programme-4/ The designer who produced the amazing graphics for this study has also written a blog for us, which you will find on our website. There you will also find profiled on all of our panellists and a transcript of this audio recording. www.dementiaresearcher.nihr.ac.uk _________________________________ About the study: The Neighbourhoods and Dementia study was funded in the UK under the first Prime Minister’s Challenge on Dementia in 2012. The eight work programmes were framed around people, spaces and places and had the following overarching aims: 1. To address the meanings, experiences, and structure of neighbourhoods for people living with dementia, their care partners and other in-contact-groups and individuals. 2. To learn from the process and praxis of making people living with dementia and their care partners core to the research agenda. 3. To encourage innovative technological advances in dementia studies and in the development of a neighbourhood model of dementia. 4. To build capacity within the research community and the networks of people living with dementia and their care partners. 5. To develop the evidence base, methods and measures for understanding the significance of neighbourhoods for people living with dementia and their care partners. 6. To create, test and evaluate interventions that are pertinent to a neighbourhood model of dementia. You can find out about this study and all the outcomes on their website at: https://sites.manchester.ac.uk/neighbourhoods-and-dementia/?ID=3314
Next Episode
2019 Roundup Christmas Special
December 23, 2019
•29m
As we prepare to welcome 2020 and a new year, we look back on some of the great podcasts we recorded during 2019 in this round-up of some of our favourite moments. A transcript of this podcast is available here on our website - https://www.dementiaresearcher.nihr.ac.uk/podcast-2019-roundup-christmas-special/ Over the past year we’ve recorded 36 podcast with more than 70 dementia researchers and expert panellists. Those podcasts have attracted over 19,000 plays from all over the world, in over 50 countries (biggest increasing coming from the USA) and this hit a high for us in October when we started to trend at over 2,500 plays each month (3,245 in November and December is set to beat that record). We have covered a wide range of topics, from life in the lab, microglia and drug discover through to improving public engagement, care in hospitals and finishing the PhD and we promise to continue in 2020. Revisiting some topics, bringing you more researchers discussing their work, and new features including talking to senior researchers to understand what makes them successful. Remember the podcast is just a small part of what we do to support Dementia Research and Early Career Researchers. Our website www.dementiaresearcher.nihr.ac.uk is packed with great content, from blogs discussing researchers work and careers, articles on coping with academic life, and useful summaries of all the funding opportunities, jobs and events that we can find. We also have a WhatsApp support group just for ECRs. Thank you to everyone of you for listening, we will be back on the 6th January with a podcast discussing study volunteer consent.
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