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Dementia Researcher - 2019 Roundup Christmas Special
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2019 Roundup Christmas Special

Dementia Researcher

12/23/19

29m

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Featured In

As we prepare to welcome 2020 and a new year, we look back on some of the great podcasts we recorded during 2019 in this round-up of some of our favourite moments. A transcript of this podcast is available here on our website - https://www.dementiaresearcher.nihr.ac.uk/podcast-2019-roundup-christmas-special/ Over the past year we’ve recorded 36 podcast with more than 70 dementia researchers and expert panellists. Those podcasts have attracted over 19,000 plays from all over the world, in over 50 countries (biggest increasing coming from the USA) and this hit a high for us in October when we started to trend at over 2,500 plays each month (3,245 in November and December is set to beat that record). We have covered a wide range of topics, from life in the lab, microglia and drug discover through to improving public engagement, care in hospitals and finishing the PhD and we promise to continue in 2020. Revisiting some topics, bringing you more researchers discussing their work, and new features including talking to senior researchers to understand what makes them successful. Remember the podcast is just a small part of what we do to support Dementia Research and Early Career Researchers. Our website www.dementiaresearcher.nihr.ac.uk is packed with great content, from blogs discussing researchers work and careers, articles on coping with academic life, and useful summaries of all the funding opportunities, jobs and events that we can find. We also have a WhatsApp support group just for ECRs. Thank you to everyone of you for listening, we will be back on the 6th January with a podcast discussing study volunteer consent.

Previous Episode

In this podcast we talk we talk to three panellists, to reflect on what they discovered at the ‘Prediction and Prevention in Neurodegenerative Disease Symposium’ held on the 29th November and organised by the Preventative Neurology Unit (PNU) at Queen Mary University London. Recorded on location from QMU - Dr Megan O’Hare is join by PhD students Phazha Bothongo and Isabelle Foote from Queen Mary University and Dr Harri Sivasathiaseelan from University College London. The Symposium focused on the fascinating issues around early detection and prevention of neurodegenerative diseases, and included a star studded lined-up of speakers, including Anette Schrag, Rimona Weil and Jonathan Schott from UCL. Dennis Chan, Carol Brayne and Richard Milne from the University of Cambridge and others from QMUL, Oxford and Maastricht. The PNU is a new group set up as part of the School of Medicine & Dentistry at Queen Mary University, London. Funded by Bart's Charity to try to prevent diseases that affect the nervous system, like dementia, Parkinson’s disease and multiple sclerosis. Researching people's risk of getting these diseases, and how we can spot them before there are any obvious signs. This will help us to come up with ways to try to slow down or even stop the progress of these conditions, and keep people's brains healthy for longer. You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on our website at https://www.dementiaresearcher.nihr.ac.uk/podcast-prediction-and-prevention-in-neurodegenerative-diseases Special thanks to Charles Marshal @charl_marshall for allowing us to record this podcast. Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to adam.smith@nihr.ac.uk or find us on twitter @dem_researcher _________________________

Next Episode

This week's podcast is hosted by Anna Volkmer discussing a topic that she is particularly passionate about; consenting participants into dementia research. She is joined by Dr Clarissa Giebel, Dr James Fletcher and Dr Aida Suarez-Gonzalez all who have first-hand experience of consenting adults into dementia research trials and studies and share their experiences and tips. Listen to hear how each of the panellists find navigating the 'grey area' of capacity, hear a remarkable story of bravery from one person who took part in dementia research and hear the panel discuss how we could all benefit from taking the time to produce inclusive documents that are not too long and jargon-filled. The panel discuss their experiences within the context of adhering to the English and Welsh mental capacity act of 2005: http://www.legislation.gov.uk/ukpga/2005/9/contents The useful website Dr Aida Suarez-Gonzalez mentions can be found here: https://www.changepeople.org/ The resources developed by Jill Pearl and Speakability can be found in their new home on the Collaboration of Aphasia Trialists (CAT). You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on our website. Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to dementiaresearcher@nihr.ac.uk or find us on twitter @dem_researcher This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.

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