Neighbourhoods, dementia & co-creation to put research into action
Dementia Researcher
12/02/19
•43m
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This week Adam Smith is at the University of Manchester to talk with a research team who over the last 5-years has been working collaboratively with people living with dementia and family carers on a study focusing on Neighbourhoods and Dementia. This weeks panel has Dr Sarah Campbell a Research Associate at the Manchester University, Professor Andrew Clark from the University of Salford and expert through experience Maria Walsh as Co-researcher and Study Adviser. In this podcast we discuss how researchers and study participants worked together to find innovative and meaningful ways to disseminate the findings from their research. Ensuring that what they learnt really was put into practice and shared with those who would benefit, and how co-production took them down the path of zines. PS you can find the zines mentioned in the podcast here: https://sites.manchester.ac.uk/neighbourhoods-and-dementia/work-programme-4/ The designer who produced the amazing graphics for this study has also written a blog for us, which you will find on our website. There you will also find profiled on all of our panellists and a transcript of this audio recording. www.dementiaresearcher.nihr.ac.uk _________________________________ About the study: The Neighbourhoods and Dementia study was funded in the UK under the first Prime Minister’s Challenge on Dementia in 2012. The eight work programmes were framed around people, spaces and places and had the following overarching aims: 1. To address the meanings, experiences, and structure of neighbourhoods for people living with dementia, their care partners and other in-contact-groups and individuals. 2. To learn from the process and praxis of making people living with dementia and their care partners core to the research agenda. 3. To encourage innovative technological advances in dementia studies and in the development of a neighbourhood model of dementia. 4. To build capacity within the research community and the networks of people living with dementia and their care partners. 5. To develop the evidence base, methods and measures for understanding the significance of neighbourhoods for people living with dementia and their care partners. 6. To create, test and evaluate interventions that are pertinent to a neighbourhood model of dementia. You can find out about this study and all the outcomes on their website at: https://sites.manchester.ac.uk/neighbourhoods-and-dementia/?ID=3314
Previous Episode
Alzheimer's Research UK Drug Discovery
November 18, 2019
•37m
In this podcast we welcome academics and industry to discuss the Dementia Consortium and drug discovery, from the basics of target validation to the question you always wanted to ask big pharma - what is their motivation for investing! The panel is made up of Dr Declan Jones and Dr John Isaac both from Johnson & Johnson, one of the seven industry partners of the Dementia Consortium, Professor Paul Whiting, the CSO at the Drug Discovery Institute at UCL and James Connell the Research Manager at Alzheimer's Research UK who coordinates the Dementia Consortium. The Dementia Consortium is a private-charity partnership between Alzheimer’s Research UK, Evotec and the pharmaceutical companies Abbvie, Astex Pharmaceuticals, Eisai, Johnson & Johnson, Lilly and MSD. The Consortium provides drug discovery resources, project management, industry expertise and tools as well as full funding support for projects. It can support small molecule or antibody-based strategies and aims to generate tools to achieve preclinical target validation. The ultimate goal is to progress successful projects from laboratories towards the clinic. You can find out more about the Dementia Consortium here, including details of their funding programmes throughout the year: https://www.dementiaconsortium.org/ You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on our website at https://www.dementiaresearcher.nihr.ac.uk/podcast-alzheimers-research-uk-drug-discovery Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to adam.smith@nihr.ac.uk or find us on twitter @dem_researcher _________________________ Join Dementia Research a topic of a previous podcast has been selected as a Top 100 innovation created by University College London. The overall winner will be decided by a public vote. It would be great if you could show your support by voting for them by hitting the thumbs up on this page - https://www.ucl.ac.uk/made-at-ucl/stories/join-dementia-research-getting-public-involved Thank you
Next Episode
Prediction And Prevention In Neurodegenerative Diseases
December 16, 2019
•39m
In this podcast we talk we talk to three panellists, to reflect on what they discovered at the ‘Prediction and Prevention in Neurodegenerative Disease Symposium’ held on the 29th November and organised by the Preventative Neurology Unit (PNU) at Queen Mary University London. Recorded on location from QMU - Dr Megan O’Hare is join by PhD students Phazha Bothongo and Isabelle Foote from Queen Mary University and Dr Harri Sivasathiaseelan from University College London. The Symposium focused on the fascinating issues around early detection and prevention of neurodegenerative diseases, and included a star studded lined-up of speakers, including Anette Schrag, Rimona Weil and Jonathan Schott from UCL. Dennis Chan, Carol Brayne and Richard Milne from the University of Cambridge and others from QMUL, Oxford and Maastricht. The PNU is a new group set up as part of the School of Medicine & Dentistry at Queen Mary University, London. Funded by Bart's Charity to try to prevent diseases that affect the nervous system, like dementia, Parkinson’s disease and multiple sclerosis. Researching people's risk of getting these diseases, and how we can spot them before there are any obvious signs. This will help us to come up with ways to try to slow down or even stop the progress of these conditions, and keep people's brains healthy for longer. You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on our website at https://www.dementiaresearcher.nihr.ac.uk/podcast-prediction-and-prevention-in-neurodegenerative-diseases Special thanks to Charles Marshal @charl_marshall for allowing us to record this podcast. Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to adam.smith@nihr.ac.uk or find us on twitter @dem_researcher _________________________
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