Consenting Research Participants
Dementia Researcher
01/06/20
•32m
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This week's podcast is hosted by Anna Volkmer discussing a topic that she is particularly passionate about; consenting participants into dementia research. She is joined by Dr Clarissa Giebel, Dr James Fletcher and Dr Aida Suarez-Gonzalez all who have first-hand experience of consenting adults into dementia research trials and studies and share their experiences and tips. Listen to hear how each of the panellists find navigating the 'grey area' of capacity, hear a remarkable story of bravery from one person who took part in dementia research and hear the panel discuss how we could all benefit from taking the time to produce inclusive documents that are not too long and jargon-filled. The panel discuss their experiences within the context of adhering to the English and Welsh mental capacity act of 2005: http://www.legislation.gov.uk/ukpga/2005/9/contents The useful website Dr Aida Suarez-Gonzalez mentions can be found here: https://www.changepeople.org/ The resources developed by Jill Pearl and Speakability can be found in their new home on the Collaboration of Aphasia Trialists (CAT). You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on our website. Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to dementiaresearcher@nihr.ac.uk or find us on twitter @dem_researcher This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.
Previous Episode
2019 Roundup Christmas Special
December 23, 2019
•29m
As we prepare to welcome 2020 and a new year, we look back on some of the great podcasts we recorded during 2019 in this round-up of some of our favourite moments. A transcript of this podcast is available here on our website - https://www.dementiaresearcher.nihr.ac.uk/podcast-2019-roundup-christmas-special/ Over the past year we’ve recorded 36 podcast with more than 70 dementia researchers and expert panellists. Those podcasts have attracted over 19,000 plays from all over the world, in over 50 countries (biggest increasing coming from the USA) and this hit a high for us in October when we started to trend at over 2,500 plays each month (3,245 in November and December is set to beat that record). We have covered a wide range of topics, from life in the lab, microglia and drug discover through to improving public engagement, care in hospitals and finishing the PhD and we promise to continue in 2020. Revisiting some topics, bringing you more researchers discussing their work, and new features including talking to senior researchers to understand what makes them successful. Remember the podcast is just a small part of what we do to support Dementia Research and Early Career Researchers. Our website www.dementiaresearcher.nihr.ac.uk is packed with great content, from blogs discussing researchers work and careers, articles on coping with academic life, and useful summaries of all the funding opportunities, jobs and events that we can find. We also have a WhatsApp support group just for ECRs. Thank you to everyone of you for listening, we will be back on the 6th January with a podcast discussing study volunteer consent.
Next Episode
Molecular Basis of Alzheimer's Disease
January 20, 2020
•29m
Listen to this week's podcast to hear Professor Louise Serpell and Dr Karen Marshall from the University of Sussex talk Biochemistry and drug development. Learn about what amyloid fibrils actually are, their structure, other diseases that are caused by them and ultimately what we can do with this knowledge. You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on here https://www.dementiaresearcher.nihr.ac.uk/podcast-molecular-basis-of-alzheimers-disease Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. We encourage all of our listeners to visit our website, it doesn’t matter if you are in the UK or elsewhere in the world as there is something there for everyone. We add new content every day, from blogs discussing peoples research and their careers, a full dementia and research events planner, details of all upcoming funding opportunities + lots more. Register today, and you’ll receive a short weekly news round-up email each Friday, to ensure you don't miss a think. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to dementiaresearcher@ucl.ac.uk This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.
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