What Are People Going to Think?

About IBD

04/09/19

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33m

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People who live with Crohn's disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a person's life, especially when there are cultural influences also at play.Tina Aswani Omprakash, who lives with Crohn's disease and a permanent ileostomy, shares her story of personal empowerment and how she is working to help other people with IBD live their lives with confidence. Tina describes how IBD has profoundly affected her family as well as why she decided to become an outspoken advocate for the IBD and ostomy communities and start her blog, Own Your Crohn's.

Concepts discussed on this episode:

Pouchitis: https://www.verywellhealth.com/what-is-pouchitis-in-a-jpouch-1942974
Rectovaginal fistula: https://www.verywellhealth.com/rectovaginal-fistula-overview-4587356
Perianal disease: https://www.verywellhealth.com/what-is-the-perianal-area-1942412
J-pouch: https://www.verywellhealth.com/before-during-and-after-j-pouch-surgery-4137938
Ileostomy: https://www.verywellhealth.com/what-you-need-to-know-about-ileostomy-surgery-1942936
Step therapy: https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/steptherapy/
Abscess: https://www.verywellhealth.com/perirectal-abscess-2328821
Pyoderma gangrenosum: https://www.verywellhealth.com/pyoderma-gangrenosum-skin-disorder-1943016
Erythema nodosum: https://www.verywellhealth.com/erythema-nodosum-1943012

Find Tina Aswani Omprakash at:

Blog:http://ownyourcrohns.com/
Facebook:https://www.facebook.com/ownyourcrohns/
Twitter:https://twitter.com/ownyourcrohns
Instagram:https://www.instagram.com/ownyourcrohns/

Find Amber J Tresca at:

Verywell:https://www.verywell.com/ibd-crohns-colitis-4014703
Blog:http://aboutibd.com/
Facebook:https://www.facebook.com/aboutibd
Twitter:https://twitter.com/aboutIBD
Pinterest:https://www.pinterest.com/aboutibd/
Instagram:https://www.instagram.com/about_IBD/

Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Previous Episode

Help for Parents With Crohn's Disease or Ulcerative Colitis

March 26, 2019

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57m

How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn's and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media.

1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood Project

Concepts and ideas discussed in this episode:

Resources From the Crohn's and Colitis Foundation:
- Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis
- Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist
- Just Like Me: http://justlikemeibd.org
- Quiz My IBD: http://www.ibdskillsquiz.org
- Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/
- Crohn's & Colitis Community: https://www.crohnscolitiscommunity.org/
The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/

Find Dr Rajeev Jain at:

Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/
Twitter: https://twitter.com/rajster

Find IBD Moms at:

Facebook: https://www.facebook.com/IBDMoms/
Twitter: https://twitter.com/ibdmoms
Instagram: https://www.instagram.com/ibdmoms/

Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at:

Blog: https://crazycreolemommy.com/
Facebook: https://www.facebook.com/CrazyCreoleMama
Twitter: https://twitter.com/CrzyCreoleMommy/
Instagram: https://www.instagram.com/crazycreolemama/

Find Amber J Tresca at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutibd
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Next Episode

You Have to Do What's Best For You

April 23, 2019

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45m

Many young people who are undergoing ileostomy surgery to treat Crohn's disease or ulcerative colitis have never met another younger person with an ostomy. Gaylyn Henderson, founder of Gutless and Glamorous, wants to make sure that people living with inflammatory bowel disease (IBD) don't experience the uncertainty and stigma that she encountered before her ostomy surgery. In between running a successful foundation and a support group for people with chronic illness, Gaylyn has also become a spokeswoman for people with an ostomy, proving that her ileostomy is not a barrier to success. Concepts and ideas discussed on this episode: