Help for Parents With Crohn's Disease or Ulcerative Colitis
About IBD
03/26/19
•57m
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How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn's and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media.
1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood ProjectConcepts and ideas discussed in this episode:
- Resources From the Crohn's and Colitis Foundation:
- Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis
- Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist
- Just Like Me: http://justlikemeibd.org
- Quiz My IBD: http://www.ibdskillsquiz.org
- Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/
- Crohn's & Colitis Community: https://www.crohnscolitiscommunity.org/
- The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/
Find Dr Rajeev Jain at:
- Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/
- Twitter: https://twitter.com/rajster
Find IBD Moms at:
- Facebook: https://www.facebook.com/IBDMoms/
- Twitter: https://twitter.com/ibdmoms
- Instagram: https://www.instagram.com/ibdmoms/
Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at:
- Blog: https://crazycreolemommy.com/
- Facebook: https://www.facebook.com/CrazyCreoleMama
- Twitter: https://twitter.com/CrzyCreoleMommy/
- Instagram: https://www.instagram.com/crazycreolemama/
Find Amber J Tresca at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/
Previous Episode
Your Body Is Depending on You to Be Assertive
March 12, 2019
•27m
It's common for people with IBD to look online for patients who have a similar disease journey to their own. For men, however, there are fewer places to find such a peer because there are not as many men in the IBD influencer space as there are women. That's where Rasheed Clarke, author of Three Tablets Twice Daily, blogger, and ulcerative colitis and j-pouch patient steps in. Hear Rasheed contrast how his running career is different before and after j-pouch surgery, his thoughts on being one of the few male voices in the online IBD community, how we can encourage more men to share their journey, and the wild and wonderful thing he did with a toilet for World IBD Day in 2017.
Concepts and ideas discussed in this episode:
- J-pouch surgery: https://www.verywellhealth.com/what-you-need-to-know-about-j-pouch-surgery-1942967
- Colectomy surgery: https://www.verywellhealth.com/types-of-colectomy-surgery-1943059
- Exercise and IBD: https://www.verywellhealth.com/exercising-with-ibd-4582068
- World IBD Day: https://worldibdday.org
Find Rasheed Clarke at:
- Blog: https://rasheedclarke.com
- Twitter: https://twitter.com/rasheedclarke
- Instagram: https://www.instagram.com/rasheedclarke/
- Facebook: https://www.facebook.com/rasheedclarke
Find Amber J Tresca at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/
Next Episode
What Are People Going to Think?
April 9, 2019
•33m
People who live with Crohn's disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a person's life, especially when there are cultural influences also at play.Tina Aswani Omprakash, who lives with Crohn's disease and a permanent ileostomy, shares her story of personal empowerment and how she is working to help other people with IBD live their lives with confidence. Tina describes how IBD has profoundly affected her family as well as why she decided to become an outspoken advocate for the IBD and ostomy communities and start her blog, Own Your Crohn's.
Concepts discussed on this episode:
- Pouchitis: https://www.verywellhealth.com/what-is-pouchitis-in-a-jpouch-1942974
- Rectovaginal fistula: https://www.verywellhealth.com/rectovaginal-fistula-overview-4587356
- Perianal disease: https://www.verywellhealth.com/what-is-the-perianal-area-1942412
- J-pouch: https://www.verywellhealth.com/before-during-and-after-j-pouch-surgery-4137938
- Ileostomy: https://www.verywellhealth.com/what-you-need-to-know-about-ileostomy-surgery-1942936
- Step therapy: https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/steptherapy/
- Abscess: https://www.verywellhealth.com/perirectal-abscess-2328821
- Pyoderma gangrenosum: https://www.verywellhealth.com/pyoderma-gangrenosum-skin-disorder-1943016
- Erythema nodosum: https://www.verywellhealth.com/erythema-nodosum-1943012
Find Tina Aswani Omprakash at:
- Blog:http://ownyourcrohns.com/
- Facebook:https://www.facebook.com/ownyourcrohns/
- Twitter:https://twitter.com/ownyourcrohns
- Instagram:https://www.instagram.com/ownyourcrohns/
Find Amber J Tresca at:
- Verywell:https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog:http://aboutibd.com/
- Facebook:https://www.facebook.com/aboutibd
- Twitter:https://twitter.com/aboutIBD
- Pinterest:https://www.pinterest.com/aboutibd/
- Instagram:https://www.instagram.com/about_IBD/
Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/
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