You Have to Do What's Best For You
About IBD
04/23/19
•45m
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Many young people who are undergoing ileostomy surgery to treat Crohn's disease or ulcerative colitis have never met another younger person with an ostomy. Gaylyn Henderson, founder of Gutless and Glamorous, wants to make sure that people living with inflammatory bowel disease (IBD) don't experience the uncertainty and stigma that she encountered before her ostomy surgery. In between running a successful foundation and a support group for people with chronic illness, Gaylyn has also become a spokeswoman for people with an ostomy, proving that her ileostomy is not a barrier to success. Concepts and ideas discussed on this episode:
- Crohn's colitis: https://www.verywellhealth.com/what-is-crohns-colitis-1942589
- Proctectomy: https://www.verywellhealth.com/proctectomy-surgery-for-inflammatory-bowel-disease-4122490
- Ileostomy: https://www.verywellhealth.com/what-you-need-to-know-about-ileostomy-surgery-1942936
- Stricture: https://www.verywellhealth.com/what-is-the-lumen-1942954
- Avascular necrosis: https://www.verywellhealth.com/facts-about-osteonecrosis-189426
- Blog: https://www.gutlessandglamorous.org
- Facebook: https://www.facebook.com/GutlessandGlamorous/
- Twitter: https://twitter.com/GutlessGlamour
- Instagram: https://www.instagram.com/gutlessandglamorous/
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Previous Episode
What Are People Going to Think?
April 9, 2019
•33m
People who live with Crohn's disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a person's life, especially when there are cultural influences also at play.Tina Aswani Omprakash, who lives with Crohn's disease and a permanent ileostomy, shares her story of personal empowerment and how she is working to help other people with IBD live their lives with confidence. Tina describes how IBD has profoundly affected her family as well as why she decided to become an outspoken advocate for the IBD and ostomy communities and start her blog, Own Your Crohn's.
Concepts discussed on this episode:
- Pouchitis: https://www.verywellhealth.com/what-is-pouchitis-in-a-jpouch-1942974
- Rectovaginal fistula: https://www.verywellhealth.com/rectovaginal-fistula-overview-4587356
- Perianal disease: https://www.verywellhealth.com/what-is-the-perianal-area-1942412
- J-pouch: https://www.verywellhealth.com/before-during-and-after-j-pouch-surgery-4137938
- Ileostomy: https://www.verywellhealth.com/what-you-need-to-know-about-ileostomy-surgery-1942936
- Step therapy: https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/steptherapy/
- Abscess: https://www.verywellhealth.com/perirectal-abscess-2328821
- Pyoderma gangrenosum: https://www.verywellhealth.com/pyoderma-gangrenosum-skin-disorder-1943016
- Erythema nodosum: https://www.verywellhealth.com/erythema-nodosum-1943012
Find Tina Aswani Omprakash at:
- Blog:http://ownyourcrohns.com/
- Facebook:https://www.facebook.com/ownyourcrohns/
- Twitter:https://twitter.com/ownyourcrohns
- Instagram:https://www.instagram.com/ownyourcrohns/
Find Amber J Tresca at:
- Verywell:https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog:http://aboutibd.com/
- Facebook:https://www.facebook.com/aboutibd
- Twitter:https://twitter.com/aboutIBD
- Pinterest:https://www.pinterest.com/aboutibd/
- Instagram:https://www.instagram.com/about_IBD/
Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/
Next Episode
I Just Said Yes
May 7, 2019
•35m
Living with Crohn's disease or ulcerative colitis may have a significant affect on intimate relationships. The reasons for this are as individual as we are but can include pain, fatigue, medication side effects, and problems with body image. Kait Scalisi, an NYC-based sex educator who founded Passion by Kait, has devoted her professional life to helping women and couples learn to reconnect with themselves and their partner in order to enhance intimacy and reconnect with pleasure. Kait lives with Crohn's disease and ankylosing spondylitis, and therefore has a deep understanding of how chronic conditions can affect intimate relationships (both with oneself and with a partner). Hear Kait's Crohn's disease journey and learn how she helps people find their way back to enjoying their spark, both in the bedroom and outside of it. Find Kait Scalisi at:
- Web site: https://passionbykait.com/
- Facebook: https://www.facebook.com/PassionbyKait/
- Instagram: https://www.instagram.com/passionbykait/
- Twitter: https://twitter.com/passionbykait
- YouTube: https://www.youtube.com/user/PassionbyKait
- Pinterest: https://www.pinterest.com/passionbykait/
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
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