Summer of Activism: It's Now or Never

About IBD

08/19/19

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28m

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If you have the chance to speak on behalf of the inflammatory bowel diseases (IBD) community: would you take it? At first, volunteer and Crohn's disease advocate Keri Flaccomio wondered if she had a right to attend a day on the hill event with the Crohn's and Colitis Foundation and lobby in Washington DC on behalf of the IBD community. Her experiences while she was on the hill helped her to understand that not only did she have the right, but she also had a responsibility to tell her story — and the stories of others living with IBD. Learn how Keri made her hill meetings more effective and how they helped her to become empowered as an activist. Find Keri Ann Flaccomio at:

Tumblr: https://mygutfeelings.tumblr.com/
Website: http://www.keriannflaccomio.com/
Instagram: https://www.instagram.com/keriannecdotes
Twitter: http://www.twitter.com/keriannecdotes
LinkedIn: https://www.linkedin.com/in/keriannflaccomio/

Find Amber J Tresca of About IBD at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutIBD/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits:

Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney
"About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

Previous Episode

Summer of Activism: Have Your Voice Heard on the Hill

August 13, 2019

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17m

The inflammatory bowel diseases (IBD) can make people feel powerless and isolated. Participating in day on the Hill events in Washington DC with patient advocacy groups are one way to take back control and have your voice heard by those who can help affect change. Hear from Jaime Holland of Pretty Rotten Guts, who describes her experiences in lobbying on Capital Hill including why it's important to her, how she navigates the day with mobility issues, and why the experience is empowering.

Download your FREE copy of the new single, "IBD Dance Party," by signing up for the About IBD newsletter here: http://aibdnewsletter.aboutibd.com/music

Find Jaime Holland of Pretty Rotten Guts at:

Blog: http://prettyrottenguts.tumblr.com/
Twitter: https://twitter.com/JaimeEditor
Instagram: https://www.instagram.com/slightlyjaided/
YouTube: http://po.st/prKAKf

Find Amber J Tresca of About IBD at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutIBD/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

Next Episode

Summer of Activism: Connecting the Numbers to a Story

August 27, 2019

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16m

In the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn's and Colitis Awareness Week, she spoke at a briefing about IBD and minority health. It was an opportunity to bring awareness to this little-discussed factor of IBD and it presented some challenges and opportunities. Learn more about Congressional Briefings, how they are an important tool for advocacy groups, and how they have an impact on public policy.