Summer of Activism: Connecting the Numbers to a Story

About IBD

08/27/19

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16m

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In the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn's and Colitis Awareness Week, she spoke at a briefing about IBD and minority health. It was an opportunity to bring awareness to this little-discussed factor of IBD and it presented some challenges and opportunities. Learn more about Congressional Briefings, how they are an important tool for advocacy groups, and how they have an impact on public policy.

See video of the Congressional Briefing on IBD & Population Health: https://www.facebook.com/ccfafb/videos/452493261950841/

Find Brooke Abbott of The Crazy Creole Mommy Chronicles at:

Blog: https://crazycreolemommy.com/
Facebook: https://www.facebook.com/CrazyCreoleMama
Twitter: https://twitter.com/CrzyCreoleMommy/
Instagram: https://www.instagram.com/crazycreolemama/

Find Amber J Tresca of About IBD at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutIBD/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits:

Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney
"About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

Previous Episode

Summer of Activism: It's Now or Never

August 19, 2019

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28m

If you have the chance to speak on behalf of the inflammatory bowel diseases (IBD) community: would you take it? At first, volunteer and Crohn's disease advocate Keri Flaccomio wondered if she had a right to attend a day on the hill event with the Crohn's and Colitis Foundation and lobby in Washington DC on behalf of the IBD community. Her experiences while she was on the hill helped her to understand that not only did she have the right, but she also had a responsibility to tell her story — and the stories of others living with IBD. Learn how Keri made her hill meetings more effective and how they helped her to become empowered as an activist. Find Keri Ann Flaccomio at:

Tumblr: https://mygutfeelings.tumblr.com/
Website: http://www.keriannflaccomio.com/
Instagram: https://www.instagram.com/keriannecdotes
Twitter: http://www.twitter.com/keriannecdotes
LinkedIn: https://www.linkedin.com/in/keriannflaccomio/

Find Amber J Tresca of About IBD at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutIBD/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits:

Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney
"About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

Next Episode

He Would Do the Same for Me

September 10, 2019

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32m

Caregivers play an important role in the disease journey. For Rebecca Kaplan, whose husband, Dan, lives with Crohn's disease, caregiving has been a large part of her life at times. When she went looking for support for herself as a caregiver, what she found was a need for more resources. She went on to not only create a support space for caregivers but also to take a leadership role in the inflammatory bowel disease community that benefits everyone who is touched by these diseases.

For more information:

Find Rebecca Kaplan at: