Summer of Activism: Have Your Voice Heard on the Hill

About IBD

08/13/19

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17m

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The inflammatory bowel diseases (IBD) can make people feel powerless and isolated. Participating in day on the Hill events in Washington DC with patient advocacy groups are one way to take back control and have your voice heard by those who can help affect change. Hear from Jaime Holland of Pretty Rotten Guts, who describes her experiences in lobbying on Capital Hill including why it's important to her, how she navigates the day with mobility issues, and why the experience is empowering.

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Find Jaime Holland of Pretty Rotten Guts at:

Blog: http://prettyrottenguts.tumblr.com/
Twitter: https://twitter.com/JaimeEditor
Instagram: https://www.instagram.com/slightlyjaided/
YouTube: http://po.st/prKAKf

Find Amber J Tresca of About IBD at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutIBD/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

Previous Episode

Summer of Activism: Attending Day on the Hill

July 30, 2019

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16m

How does an IBD patient attend Day on the Hill events and meet with the offices of congressional representatives in Washington DC? What is it like to go to these events? In this episode I describe how I got involved in hill day meetings, why I do it, and what the process is like to attend. I also offer you my tips on how to make the best of the time spent in the capital in order to make the biggest impact on the people who can affect change in the lives of IBD patients. How to Get Involved:

Crohn's and Colitis Foundation—Be an Advocate: https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate
International Foundation for Gastrointestinal Disorders—Advocate for Digestive Health: https://www.iffgd.org/advocate-for-digestive-health.html
United Ostomy Associations of America—Advocates for a Positive Change: https://www.ostomy.org/advocacy/

Find Amber J Tresca of About IBD at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutIBD/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

Next Episode

Summer of Activism: It's Now or Never

August 19, 2019

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28m

If you have the chance to speak on behalf of the inflammatory bowel diseases (IBD) community: would you take it? At first, volunteer and Crohn's disease advocate Keri Flaccomio wondered if she had a right to attend a day on the hill event with the Crohn's and Colitis Foundation and lobby in Washington DC on behalf of the IBD community. Her experiences while she was on the hill helped her to understand that not only did she have the right, but she also had a responsibility to tell her story — and the stories of others living with IBD. Learn how Keri made her hill meetings more effective and how they helped her to become empowered as an activist. Find Keri Ann Flaccomio at: