Your Body Is Depending on You to Be Assertive
About IBD
03/12/19
•27m
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It's common for people with IBD to look online for patients who have a similar disease journey to their own. For men, however, there are fewer places to find such a peer because there are not as many men in the IBD influencer space as there are women. That's where Rasheed Clarke, author of Three Tablets Twice Daily, blogger, and ulcerative colitis and j-pouch patient steps in. Hear Rasheed contrast how his running career is different before and after j-pouch surgery, his thoughts on being one of the few male voices in the online IBD community, how we can encourage more men to share their journey, and the wild and wonderful thing he did with a toilet for World IBD Day in 2017.
Concepts and ideas discussed in this episode:
- J-pouch surgery: https://www.verywellhealth.com/what-you-need-to-know-about-j-pouch-surgery-1942967
- Colectomy surgery: https://www.verywellhealth.com/types-of-colectomy-surgery-1943059
- Exercise and IBD: https://www.verywellhealth.com/exercising-with-ibd-4582068
- World IBD Day: https://worldibdday.org
Find Rasheed Clarke at:
- Blog: https://rasheedclarke.com
- Twitter: https://twitter.com/rasheedclarke
- Instagram: https://www.instagram.com/rasheedclarke/
- Facebook: https://www.facebook.com/rasheedclarke
Find Amber J Tresca at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/
Previous Episode
I Felt a Lot of Guilt
February 26, 2019
•23m
What compels a person to share their personal journey with IBD? For Rasheed Clarke, author of Three Tablets Twice Daily, his writing began as a way to keep track of everything for himself and his healthcare team. It quickly turned into a tool that he used to show those around him the stark realities of a life with IBD: bloody diarrhea and all. His coworkers and friends were shocked to learn how much he was coping with every day but not everyone close to him approved of his honesty. On this episode of About IBD, Rasheed digs into the positives, the negatives, and the responsibilities that come with being an influencer in the IBD space.
Find Rasheed Clarke at:- Blog: https://rasheedclarke.com
- Twitter: https://twitter.com/rasheedclarke
- Instagram: https://www.instagram.com/rasheedclarke/
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Next Episode
Help for Parents With Crohn's Disease or Ulcerative Colitis
March 26, 2019
•57m
How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn's and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media.
1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood ProjectConcepts and ideas discussed in this episode:
- Resources From the Crohn's and Colitis Foundation:
- Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis
- Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist
- Just Like Me: http://justlikemeibd.org
- Quiz My IBD: http://www.ibdskillsquiz.org
- Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/
- Crohn's & Colitis Community: https://www.crohnscolitiscommunity.org/
- The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/
Find Dr Rajeev Jain at:
- Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/
- Twitter: https://twitter.com/rajster
Find IBD Moms at:
- Facebook: https://www.facebook.com/IBDMoms/
- Twitter: https://twitter.com/ibdmoms
- Instagram: https://www.instagram.com/ibdmoms/
Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at:
- Blog: https://crazycreolemommy.com/
- Facebook: https://www.facebook.com/CrazyCreoleMama
- Twitter: https://twitter.com/CrzyCreoleMommy/
- Instagram: https://www.instagram.com/crazycreolemama/
Find Amber J Tresca at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/
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