Impact of Patient and Public Involvement in Research
Dementia Researcher Vodcast
11/14/18
•36m
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In this latest podcast we hear from a volunteer, researcher and charity working closely together to ensure that people affected by dementia are involved in every stage of research to maximise impact. We discuss the challenges of PPI and provide some practical advice to support you to work with volunteers in a mutually beneficial way. Patient and public involvement (PPI) in research is a philosophy whereby research is carried out ‘with’ or ‘by’ people affected by the condition rather than ‘about’, ‘for’ or ‘to’ people. Over the past twenty years an increasing value has been placed on including the lived experience of patients and the public in research covering the full spectrum of basic science through to health services. Our panellists today all work for or are funded by Alzheimer’s Society - Anna-Louise Smith, Research Engagement Manager, Dr Kirsten Moore, UCL Senior Research Fellow and Jane Ward, Research Network Local Area Coordinator. Alzheimer’s Society has pioneered the active involvement of people affected by dementia through their award winning Research Network, since 1999. More recently, over the last year Alzheimer’s Society has been considering the evidence surrounding how it involves people affected by dementia in research and moving the conversation about PPI forward from ‘proving’ why it should be done to ‘improving’ how it can do it in partnership with researchers. For more information on Alzheimer's Society work on Patient and Public Involvement and to get involved visit: https://www.alzheimers.org.uk/research/play-your-part-research/patient-and-public-involvement To see other content on this topic via our twitter feed #PPIImpact visit: https://twitter.com/search?q=%23PPIImpact&src=typd
Previous Episode
Student Health and Wellbeing
November 4, 2018
•34m
Research, the discovery of new knowledge, has been described as an endless frontier. There will certainly be instances during a PhD and beyond when curiosity driven activity can indeed seem vast and relentless. It is critical that researchers at whatever stage in their career develop the capacity and capability to generate an appropriate perspective on what they are facing. Put simply, and starkly, doing research depends on being well. As such, an awareness on health and wellbeing is central, and getting the right support is key. In this podcast Oz Ismail from UCL is joined by Géraldine Garrabet a Student Support and Welfare Officer, from the School of Physics & Astronomy at University of Manchester, Dr Caroline Selai a Senior Lecturer from the UCL Institute of Neurology and finally Kellie Morrissey a Research Fellow working at the Open Lab in Newcastle University.
Next Episode
Gender Equality in Research
November 25, 2018
•25m
In this podcast we are discussing gender discrimination and the issues that researchers face, and how to raise what we know is a very challenging issue to talk when researchers face concerns about upsetting current or previous institutes that have employed them. We want to openly acknowledge the hurdles that need to be overcome in the pursuit of gender equality as well as the steps that institutions are putting in place to tackle this issue. We also looking at specific issues around paternal leave and being a parent in research and how this is a gendered issue. Understanding that women are conventionally viewed as the default primary care giver, and does this mean women can be seen as a 'poor investment' as an employee as they might take up to a year of leave, if they do are they perceived as being less committed to the field? In the chair we have Dr Aoife Kiely, Research Officer at Alzheimer’s Society and she is joined by: Dr Natalie Marchant – Natalie is an Alzheimer’s Society funded senior fellow based at UCL. Her research focuses on whether repetitive negative thinking increases cognitive debt and so, the risk of dementia. She is a mother of one and has recently returned to work following maternity leave Dr Frances Wiseman – Frances is a senior research fellow based at UCL. She holds an Alzheimer’s Society grant which funds a PhD student and is investigating the cause of Alzheimer’s disease in people who have Down syndrome. She is mum of two and married to a fellow academic. Dr Penny Rapaport - Penny is a clinical psychologist having worked clinically for a number of years with people with dementia in community, hospital and care home settings. Now working in applied health research developing interventions that are fit for purpose in the messy real world.
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