Supporting Carers, the Importance of Everyday Objects and Facing the End
Dementia Research Charity Chatathon
01/09/23
•26m
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On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.
This video / podcast features Adam talking with Wendy Mitchell, Chris Roberts and Jayne Goodrick. Three people who are living with effects of dementia every day. Chatting about why research is important to them, asking what messages they have for researchers, and what they would like to see more of, from their own experience as study participants.
Dr Nathan Davies, Senior Research Fellow, University College London. Nathan conducts research into exploring ways to support family carers of people living with dementia who are towards the end of life. With Dr Nuriye Kupeli, he have conducted a Covid-19 study developing a decision aid to support family carers having to make rapid decisions about care for a relative who has dementia and has become rapidly unwell with covid-19 (e.g. hospitalisation, visiting etc) - @NathanDavies50.
Dr Nuriye Kupeli, Senior Research Fellow, Marie Curie Palliative Care Research Department, University College London. Nuriye also conducts research into exploring ways to support family carers of people living with dementia who are towards the end of life. Along with Dr Nathan Davies, she conducted a Covid-19 study developing a decision aid to support family carers having to make rapid decisions about care for a relative who has dementia and has become rapidly unwell with Covid-19 (e.g. hospitalisation, visiting etc) - @dmkupeli.
Dr Kellyn Lee Research Fellow, University of Southampton. Kellyn's research looks at the importance of everyday objects and how they can support and maintain identity and independence in dementia care. She is currently collaborating with a care organisation to design, develop and implement a training programme with material citizenship, functional objects for meaningful lives - @kellynleefarrar
Previous Episode
Living with Dementia
January 9, 2023
•26m
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.
This video / podcast features Adam talking with Wendy Mitchell, Chris Roberts and Jayne Goodrick. Three people who are living with effects of dementia every day. Chatting about why research is important to them, asking what messages they have for researchers, and what they would like to see more of, from their own experience as study participants.
Wendy Mitchell - was diagnosed with young onset dementia on the 31st July 2014 at the age of 58 years old. Wendy retired early from the NHS having worked as a non-clinical team leader for 20 years. Post-diagnosis, she was shocked by the lack of awareness, both in the community and clinical world, so she now spends all of her time travelling around the country raising awareness and encouraging others to embrace her passion for research. Wendy is an Alzheimer's Society Ambassador, blogger and member of 3 Nations Dementia Working Group she also wrote an amazing bestselling book 'Somebody I Used to Know' a Richard and Judy Book Club Pick 2019 Paperback. With humour, truth and grace, this book her book gives a unique insight into what it's like to live with Alzheimer's disease - @WendyPMitchell.
Chris Roberts & Jayne Goodrick - are from Wales. Chris was diagnosed with mixed dementia in early 2012 but has not let this diagnosis get in the way of leading a full life. He and his amazing wife Jayne, spend most of their time promoting and providing education to others about dementia. Chris regularly give talks on what it’s like to live with dementia and how research plays an important role in unlocking new treatments and better care, supported by Jayne who provides unique insights as someone living with the disease in a different way. Together they believe in dementia rights, inclusion, co-production and the promotion of better services for everyone living with dementia. Chris is an Ambassador for the UK Alzheimer’s Society, Join Dementia Research Champion, Affiliate member of Dementia Action Alliance UK, Honorary Lecturer, Bangor University, Wales and a Member of the NICE Dementia Clinical Guideline Review Committee - @mason4233 / @jaynegoodrick.
Next Episode
Living well with Dementia, the Importance of Eyesight and what it can tell us
January 10, 2023
•27m
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Marianne Coleman Clinical Vision Research Fellow, University of Melbourne. Marianne's research looks at how people with dementia see, and how we can help them look after their eyes while living with dementia. Ensuring people living with dementia have the best eyesight possible helps to reduce their risk of falling and makes it more likely they can keep interacting with family, friends, and doing their day to day activities they enjoy. This helps people to stay living at home and doing things independently for longer - @MPOrthoptics
Dr Catherine Quinn Lecturer in Dementia Studies, University of Bradford. Catherine's research focuses on improving the quality of life of those affected by dementia. First, through gaining a better understanding of the experiences of those affected by dementia and the factors that affect their quality of life. Second, by developing interventions to improve the quality of life of those affected by dementia. She is also a co-investigator on the IDEAL programme, which is a large-scale cohort study of living well with dementia - @cquinn196
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