Living well with Dementia, the Importance of Eyesight and what it can tell us
Dementia Research Charity Chatathon
01/10/23
•27m
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On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Marianne Coleman Clinical Vision Research Fellow, University of Melbourne. Marianne's research looks at how people with dementia see, and how we can help them look after their eyes while living with dementia. Ensuring people living with dementia have the best eyesight possible helps to reduce their risk of falling and makes it more likely they can keep interacting with family, friends, and doing their day to day activities they enjoy. This helps people to stay living at home and doing things independently for longer - @MPOrthoptics
Dr Catherine Quinn Lecturer in Dementia Studies, University of Bradford. Catherine's research focuses on improving the quality of life of those affected by dementia. First, through gaining a better understanding of the experiences of those affected by dementia and the factors that affect their quality of life. Second, by developing interventions to improve the quality of life of those affected by dementia. She is also a co-investigator on the IDEAL programme, which is a large-scale cohort study of living well with dementia - @cquinn196
Previous Episode
Supporting Carers, the Importance of Everyday Objects and Facing the End
January 9, 2023
•26m
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.
This video / podcast features Adam talking with Wendy Mitchell, Chris Roberts and Jayne Goodrick. Three people who are living with effects of dementia every day. Chatting about why research is important to them, asking what messages they have for researchers, and what they would like to see more of, from their own experience as study participants.
Dr Nathan Davies, Senior Research Fellow, University College London. Nathan conducts research into exploring ways to support family carers of people living with dementia who are towards the end of life. With Dr Nuriye Kupeli, he have conducted a Covid-19 study developing a decision aid to support family carers having to make rapid decisions about care for a relative who has dementia and has become rapidly unwell with covid-19 (e.g. hospitalisation, visiting etc) - @NathanDavies50.
Dr Nuriye Kupeli, Senior Research Fellow, Marie Curie Palliative Care Research Department, University College London. Nuriye also conducts research into exploring ways to support family carers of people living with dementia who are towards the end of life. Along with Dr Nathan Davies, she conducted a Covid-19 study developing a decision aid to support family carers having to make rapid decisions about care for a relative who has dementia and has become rapidly unwell with Covid-19 (e.g. hospitalisation, visiting etc) - @dmkupeli.
Dr Kellyn Lee Research Fellow, University of Southampton. Kellyn's research looks at the importance of everyday objects and how they can support and maintain identity and independence in dementia care. She is currently collaborating with a care organisation to design, develop and implement a training programme with material citizenship, functional objects for meaningful lives - @kellynleefarrar
Next Episode
The Importance of Dementia Friendly Communities and Better Health Services
January 11, 2023
•27m
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Fiona Marshall Research Fellow, University of Nottingham (SLIDES) Fiona's research looks at the design and delivery of dementia care services in remote and rural areas of the UK. Proportionally, there are far more older people living with dementia and spousal carers then in urban areas, yet less attention and funding is afforded to these areas. By adopting a more spatial policy approach to the design and delivery of dementia focused services, my work seeks to challenge the dominance of "one size fits all" approach which underpins the most of dementia-friendly services - @fionaj1215
Dr Paul Brownbill Insight Lead-Richmond Fellowship Paul finished his PhD study, looking at caring for people who have dementia in community hospitals. The study details everyday decision making of people who work in community hospitals, looking it from an ethnometholodogical perspective. He now works for a Mental Health charity as a manager of research & impact - @paully232000
Professor Siobhan Reilly University of Bradford Siobhan researches inequalities of health and social care for people living with dementia and people with severe mental illness. Over the years, the goal of her research programme has been to improve the quality of care and the evidence base for the delivery of health and social care services for these groups. In October 2020 she started a new role as Director of the Centre for Applied Dementia Studies at University of Bradford - @DrSiobhanReilly
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