You've Got to Find the Humor in Things
About IBD
06/22/20
•28m
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Do you have a sense of humor about your IBD? Jenna Ziegler of The Comical Colon found that keeping her sense of humor has helped her through the challenges she faced after being diagnosed with ulcerative colitis in college. After fighting her way back to health after severe flare-ups and carving out the life she wanted for herself, Jenna received another stunning diagnosis: a rare liver condition called primary sclerosing cholangitis, or PSC. Over the years she has done the hard work to learn how to be an empowered patient and she shares her 5 tips on how you can learn to advocate for yourself.
Concepts discussed in this episode:
Learn about Gali Health and download the app (affiliate link).
Find Jenna Ziegler at TheComicalColon.com, Facebook, Twitter, Instagram, and LinkedIn.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
Previous Episode
I Had Contemplated Keeping It a Secret
June 1, 2020
•31m
What has been your experience with ostomy surgery? If you know someone who lives with an ileostomy or a colostomy, you'll likely get your impression about having a stoma from them. But what if that person struggles to accept their stoma? When Amber Wallace Ogle of The Ostomy Diaries was faced with ileostomy surgery to treat her Crohn's disease, she was reminded of the negative experiences of her family members who lived with an ostomy. However, it didn't take long after her surgery before she was embracing life again and working to show others that life with an ostomy can be fulfilling and beautiful. Amber tells her Crohn's disease story, gives 5 tips for advocating online, and shares a message she received from a family that has been touched by her advocacy.
Concepts discussed in this episode:
Find Amber Wallace Ogle at OstomyDiaries,com, YouTube, Facebook, Twitter, and Instagram.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
Next Episode
Find Those Things That Make You Happy
June 29, 2020
•31m
Being diagnosed with inflammatory bowel disease (Crohn's disease or ulcerative colitis) can upend your entire life. Then being diagnosed with a rare liver disease? It could truly leave you feeling hopeless. But that's not what happened to Jenna Ziegler of The Comical Colon. Not long after her ulcerative colitis diagnosis, her doctor was concerned about her liver test levels. With more testing and a lot of patient empowerment, Jenna now has a presumed diagnosis of primary sclerosing cholangitis, or PSC. She tells how she has fought to get the tests she needed to understand her level of risk, and the treatment that can help prevent PSC from progressing and causing more damage to her liver.
Concepts discussed in this episode:
- Clostridium difficile Infection
- Liver Function Tests
- IBD and Liver Disease
- IBD and PSC
- Biopsy
- Fibroscan
- Cirrhosis
- Enteropathic Arthritis
- Jenna's Liver Biopsy Series
Learn about Gali Health and download the app (affiliate link).
Find Jenna Ziegler at TheComicalColon.com, Facebook, Twitter, Instagram, and LinkedIn.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
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