Find Those Things That Make You Happy
About IBD
06/29/20
•31m
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Being diagnosed with inflammatory bowel disease (Crohn's disease or ulcerative colitis) can upend your entire life. Then being diagnosed with a rare liver disease? It could truly leave you feeling hopeless. But that's not what happened to Jenna Ziegler of The Comical Colon. Not long after her ulcerative colitis diagnosis, her doctor was concerned about her liver test levels. With more testing and a lot of patient empowerment, Jenna now has a presumed diagnosis of primary sclerosing cholangitis, or PSC. She tells how she has fought to get the tests she needed to understand her level of risk, and the treatment that can help prevent PSC from progressing and causing more damage to her liver.
Concepts discussed in this episode:
- Clostridium difficile Infection
- Liver Function Tests
- IBD and Liver Disease
- IBD and PSC
- Biopsy
- Fibroscan
- Cirrhosis
- Enteropathic Arthritis
- Jenna's Liver Biopsy Series
Learn about Gali Health and download the app (affiliate link).
Find Jenna Ziegler at TheComicalColon.com, Facebook, Twitter, Instagram, and LinkedIn.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
Previous Episode
You've Got to Find the Humor in Things
June 22, 2020
•28m
Do you have a sense of humor about your IBD? Jenna Ziegler of The Comical Colon found that keeping her sense of humor has helped her through the challenges she faced after being diagnosed with ulcerative colitis in college. After fighting her way back to health after severe flare-ups and carving out the life she wanted for herself, Jenna received another stunning diagnosis: a rare liver condition called primary sclerosing cholangitis, or PSC. Over the years she has done the hard work to learn how to be an empowered patient and she shares her 5 tips on how you can learn to advocate for yourself.
Concepts discussed in this episode:
Learn about Gali Health and download the app (affiliate link).
Find Jenna Ziegler at TheComicalColon.com, Facebook, Twitter, Instagram, and LinkedIn.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
Next Episode
The Sherman Prize With Dr Dermot McGovern
July 3, 2020
•23m
The Sherman Prize is an award created by Bruce and Cynthia Sherman to recognize those who are making great contributions to the field of research and care in inflammatory bowel disease (IBD). The Sherman family has been touched by IBD and their goal is to create a ripple effect that spreads awareness, fosters innovation, and provides inspiration in the hope that in the future, other families won't have to contend with IBD in the way that theirs has. Dr Dermot McGovern, Professor of Medicine at the David Geffen School of Medicine at the University of California in Los Angeles and the 2020 Committee Chair for The Sherman Prize talks more about the value of the Prize to the IBD community, who can make a nomination, and how to nominate a great candidate. He also talks about his research on the genetics of IBD and why it might help in leading to new treatments.
Make your nominations for the 2020 Sherman Prize 2020 by July 17th! You can learn more and do so at ShermanPrize.org.
Find The Sherman Prize at ShermanPrize.org, Facebook, Twitter, and LinkedIn.
Find Dermot P. B. McGovern, MD, PhD, FRCP at Cedars-Sinai and Twitter.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
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