This Is Still Better Than Surgery
About IBD
10/22/19
•28m
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A diagnosis of Crohn's disease and an ileostomy hasn't stopped Ryan Stevens from competing in triathlon races. He swam through high school and college and was sidelined by Crohn's just after falling in love with triathlon. He's worked his way back twice from devastating flare-ups to get back to swim, bike, run, and now to the ultimate race: the IRONMAN. Come with us as we relive the IRONMAN Triathlon in Madison, Wisconsin and discuss how Ryan prepared and competed while living with IBD and a permanent ostomy.
Find Ryan Stevens of IBD Swimming & Me, at:
- Facebook: https://www.facebook.com/IBDSwimmer/
- Twitter: https://twitter.com/tumbledgray
- Instagram: https://www.instagram.com/rp_stevens/
Find Amber J Tresca of About IBD at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutIBD/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Credits:
- Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney
- "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
Previous Episode
You Have to Take Care of Yourself
October 8, 2019
•33m
Being diagnosed with inflammatory bowel disease (IBD) at any time or at any age is challenging. However, the pre-biologic era was especially difficult because of the lack of treatment options and the absence of some of the legal protections that are in place today. Danielle O'Connor tells her story of being diagnosed with ulcerative colitis at a young age and how she managed her career as a special education teacher through many hospitalizations and surgeries.
Concepts discussed in this episode:
- Family Medical Leave Act (FMLA): https://www.verywellfamily.com/understanding-family-medical-leave-act-4628330
- Affordable Care Act (ACA): https://www.verywellhealth.com/affordable-care-act-what-you-should-know-1738904
- Rectovaginal Fistula: https://www.verywellhealth.com/rectovaginal-fistula-overview-4587356
- J-Pouch Surgery: https://www.verywellhealth.com/what-you-need-to-know-about-j-pouch-surgery-1942967
Find Danielle O'Connor at:
- Instagram: https://www.instagram.com/d_mvoc
- Twitter: https://twitter.com/Youcantmakethi4
Find Amber J Tresca of About IBD at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: https://aboutibd.com/
- Facebook: https://www.facebook.com/aboutIBD/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Credits:
- Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney
- "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
Next Episode
I Really Don't Think About My Ostomy Anymore
October 29, 2019
•29m
Living with a permanent ileostomy as a result of Crohn's disease hasn't stopped Ryan Stevens from participating in the sport he loves. He worked his way back from crushing IBD flare-ups and multiple surgeries in order to train for the ultimate triathlon: the IRONMAN. In this second part of Ryan's story, hear what happened to him while on the bike route, why the ostomy may actually provide an advantage, and Amber's unfiltered thoughts on the competitiveness of the triathlon community.
Find Ryan Stevens of IBD Swimming & Me at Facebook, Twitter, and Instagram.
Find Amber J Tresca of About IBD at Verywell Health, AboutIBD.com, Facebook, Twitter, Pinterest, and Instagram.
Credits:
- Additional sound engineering courtesy Mac Cooney
- "About IBD with Amber Tresca" ©Cooney Studio
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