
I Really Don't Think About My Ostomy Anymore
About IBD
10/29/19
•29m
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Living with a permanent ileostomy as a result of Crohn's disease hasn't stopped Ryan Stevens from participating in the sport he loves. He worked his way back from crushing IBD flare-ups and multiple surgeries in order to train for the ultimate triathlon: the IRONMAN. In this second part of Ryan's story, hear what happened to him while on the bike route, why the ostomy may actually provide an advantage, and Amber's unfiltered thoughts on the competitiveness of the triathlon community.
Find Ryan Stevens of IBD Swimming & Me at Facebook, Twitter, and Instagram.
Find Amber J Tresca of About IBD at Verywell Health, AboutIBD.com, Facebook, Twitter, Pinterest, and Instagram.
Credits:
- Additional sound engineering courtesy Mac Cooney
- "About IBD with Amber Tresca" ©Cooney Studio
Previous Episode

This Is Still Better Than Surgery
October 22, 2019
•28m
A diagnosis of Crohn's disease and an ileostomy hasn't stopped Ryan Stevens from competing in triathlon races. He swam through high school and college and was sidelined by Crohn's just after falling in love with triathlon. He's worked his way back twice from devastating flare-ups to get back to swim, bike, run, and now to the ultimate race: the IRONMAN. Come with us as we relive the IRONMAN Triathlon in Madison, Wisconsin and discuss how Ryan prepared and competed while living with IBD and a permanent ostomy.
Find Ryan Stevens of IBD Swimming & Me, at:
- Facebook: https://www.facebook.com/IBDSwimmer/
- Twitter: https://twitter.com/tumbledgray
- Instagram: https://www.instagram.com/rp_stevens/
Find Amber J Tresca of About IBD at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutIBD/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Credits:
- Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney
- "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
Next Episode

Don't Stop the Things That You Love
November 5, 2019
•31m
Being diagnosed with ulcerative colitis as a child and undergoing j-pouch surgery in high school hasn't slowed Sneha Dave down at all. In fact, it spurred her to found two groups that are focused on bringing young people into the patient advocacy space: the Crohn's and Colitis Young Adults Network (CCYA) and the Health Advocacy Summit (HAS). Learn how Sneha grew the CCYA from its humble start as a newsletter, the opportunities that CCYA and HAS offer to young patients, and Sneha's secret to managing a work/life balance.
Find the Health Advocacy Summit at Facebook, Twitter, Instagram, and LinkedIn. Find the Crohn's and Colitis Young Adults Network at Facebook, Twitter, Instagram, LinkedIn, and YouTube. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.If you like this episode you’ll love
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