I'm Sick and Nobody Will Help Me
About IBD
10/30/18
•45m
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What have you done when you couldn't get anyone to take the symptoms of IBD seriously and you found yourself out of options? For Meredith, the road to a Crohn's disease diagnosis was long and so frustrating that she wound up pleading for help from a specialist she'd never met. Going online to connect with other patients also took Meredith to places both light and dark, and she, Jaime, and I sort through our various experiences with social media as well as how we can work towards creating more hopeful content for new IBD patients in the future. Concepts mentioned on this episode: What Are Mast Cells?: https://www.verywellhealth.com/what-are-mast-cells-1944889 What Is Gastroparesis?: https://www.verywellhealth.com/what-is-gastroparesis-1741788 Find Meredith Smolen at:
- Facebook: https://www.facebook.com/ShearTruth/
- Instagram: https://www.instagram.com/mere282/
- Twitter: https://twitter.com/been_foiled
- Blog: http://prettyrottenguts.tumblr.com/
- Twitter: https://twitter.com/JaimeEditor
- Instagram: https://www.instagram.com/slightlyjaided/
- YouTube: http://po.st/prKAKf
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Previous Episode
I Am Beyond Thankful
October 16, 2018
•45m
Is it possible to take the diagnosis that turned your world upside down and turn it into a positive force in your life? My guest on About IBD is Lilly Stairs, Head of Patient Advocacy at Clara Health who lives with Crohn's disease did exactly that. First diagnosed with psoriatic arthritis, it was only after Lilly's symptoms weren't improving and she was in and out of the hospital that healthcare providers finally discovered a Crohn's disease flare-up in her small bowel. Lilly found the right mix of treatments to get her Crohn's under control and now works with her team at Clara to connect patients to clinical trials. Find Lilly Stairs at
- Blog: https://www.lillystairs.com/
- Twitter: https://twitter.com/LillyStairs
- Instagram: https://www.instagram.com/lillyrosestairs/
- LinkedIn: https://www.linkedin.com/in/lillystairs/
- Facebook: https://www.facebook.com/lilly.stairs.56
- Twitter: https://twitter.com/Clara_Health
- Instagram: https://www.instagram.com/clarahealth/
- LinkedIn: https://www.linkedin.com/company/clara-health
- Facebook: https://www.facebook.com/clarahealth
- Patients Have Power Podcast: https://itunes.apple.com/us/podcast/patients-have-power/id1321097377?mt=2
Next Episode
I Just Kept Living With Bad Pain
November 6, 2018
•41m
Even when you're knowledgeable about IBD, it can still sneak up on you and skew your perception of how much control the disease has over your life. Angelica Catalano, Director of Media Partnerships at The Mighty, describes how ulcerative colitis has affected her since her diagnosis at the age of 6, and how she was living with symptoms on a daily basis. Emergency surgery shook her world, prompting her to make a change in her treatment program to prevent future IBD-related complications. Through her work at The Mighty, Angelica pursues her passion of helping people with chronic illness improve their quality of life by bringing them together with the nonprofits that provide support and resources. IBD topic areas on The Mighty: Crohn's disease: https://themighty.com/topic/crohns-disease/ Ulcerative colitis: https://themighty.com/topic/ulcerative-colitis/ Find The Mighty at:
- Facebook: https://www.facebook.com/TheMightySite/
- Twitter: https://twitter.com/TheMightySite
- Instagram: https://www.instagram.com/themightysite/
- Pinterest: https://www.pinterest.com/themightysite/
- App Store: https://itunes.apple.com/us/app/the-mighty/id1432324582
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/ibdcrohns/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
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