I Am Beyond Thankful
About IBD
10/16/18
•45m
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Is it possible to take the diagnosis that turned your world upside down and turn it into a positive force in your life? My guest on About IBD is Lilly Stairs, Head of Patient Advocacy at Clara Health who lives with Crohn's disease did exactly that. First diagnosed with psoriatic arthritis, it was only after Lilly's symptoms weren't improving and she was in and out of the hospital that healthcare providers finally discovered a Crohn's disease flare-up in her small bowel. Lilly found the right mix of treatments to get her Crohn's under control and now works with her team at Clara to connect patients to clinical trials. Find Lilly Stairs at
- Blog: https://www.lillystairs.com/
- Twitter: https://twitter.com/LillyStairs
- Instagram: https://www.instagram.com/lillyrosestairs/
- LinkedIn: https://www.linkedin.com/in/lillystairs/
- Facebook: https://www.facebook.com/lilly.stairs.56
- Twitter: https://twitter.com/Clara_Health
- Instagram: https://www.instagram.com/clarahealth/
- LinkedIn: https://www.linkedin.com/company/clara-health
- Facebook: https://www.facebook.com/clarahealth
- Patients Have Power Podcast: https://itunes.apple.com/us/podcast/patients-have-power/id1321097377?mt=2
Previous Episode
Welcome to Camp Oasis
September 11, 2018
•32m
What is your favorite week of the year? For the kids, counselors, and volunteers at Camp Oasis, their favorite is camp week. Learn more about a summer camp that's designed especially for kids who have IBD but is also the place where the campers actually feel the most freedom from their disease. Amber visited camp on visitor's day and talked with campers, leaders in training, and counselors to find out what makes Camp Oasis so special to them.
- Find out more about Camp Oasis: http://www.crohnscolitisfoundation.org/get-involved/camp-oasis/
- Find Camp Oasis locations: http://www.crohnscolitisfoundation.org/get-involved/camp-oasis/find-a-camp/
- Crohn's & Colitis Foundation: http://www.crohnscolitisfoundation.org/
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/ibdcrohns/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Next Episode
I'm Sick and Nobody Will Help Me
October 30, 2018
•45m
What have you done when you couldn't get anyone to take the symptoms of IBD seriously and you found yourself out of options? For Meredith, the road to a Crohn's disease diagnosis was long and so frustrating that she wound up pleading for help from a specialist she'd never met. Going online to connect with other patients also took Meredith to places both light and dark, and she, Jaime, and I sort through our various experiences with social media as well as how we can work towards creating more hopeful content for new IBD patients in the future. Concepts mentioned on this episode: What Are Mast Cells?: https://www.verywellhealth.com/what-are-mast-cells-1944889 What Is Gastroparesis?: https://www.verywellhealth.com/what-is-gastroparesis-1741788 Find Meredith Smolen at:
- Facebook: https://www.facebook.com/ShearTruth/
- Instagram: https://www.instagram.com/mere282/
- Twitter: https://twitter.com/been_foiled
- Blog: http://prettyrottenguts.tumblr.com/
- Twitter: https://twitter.com/JaimeEditor
- Instagram: https://www.instagram.com/slightlyjaided/
- YouTube: http://po.st/prKAKf
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
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