Health Advocacy With Brooke Abbott
About IBD
08/30/17
•66m
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Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government!
6:00: What’s an IBD Elevator Speech? Hear Brooke’s and then use the create your own.
7:15: Find out what happens when you meet with the staff in your representatives’ office.
12:27: What should you know—and do—before you meet with someone at your representative’s office?
12:53: What you do say when you call your representative’s office to set up a meeting?
15:34: Do this if your representative will not meet with you.
22:07: What to write on a postcard you send to your representative.
28:50: Do our representatives pay attention to Twitter hashtags?
29:48: How https://www.govtrack.us/ and https://www.congress.gov/ can help you advocate!
35:30: Brooke always does this one thing before she goes into a meeting.
39:70: Learn which senator is also a gastroenterologist.
44:04: We talk about one of my Senators who I coincidentally met with about a week after we recorded this episode! (See my Facebook or Twitter feed for the photos!)
52:35: New segment on the show: Amber’s Unsolicited Parenting Advice!
59:23: Listen to About IBD Episode 5 to learn why Brooke is Amber’s "Alec Baldwin." Want to do more?
*Brooke and Amber attended the Digestive Disease National Coalition Public Policy Forum in 2017. You can find out more about their events and legislative events on their site: http://www.ddnc.org/
*Sign up for the Crohn’s and Colitis Foundation Advocacy Network to get informed about advocacy goals: http://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/
*See if your legislator is on the Crohn’s and Colitis Caucus. If not, write them and ask them to join! http://www.crohnscolitisfoundation.org/assets/pdfs/advocacy/2017-caucus-handout-1.pdf
*Don’t know where to start? Get in touch with us—we’re friendly! Featured Guest:
Brooke Abbott, The Crazy Creole Mommy Chronicles
- Blog: https://crazycreolemommy.com/
- Facebook: https://www.facebook.com/CrazyCreoleMama
- Twitter: https://twitter.com/CrzyCreoleMommy/
- Instagram: https://www.instagram.com/crazycreolemama/
Find Amber J Tresca at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/ibdcrohns/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Intro Music: Retro Soul - Bensound.com - www.bensound.com/royalty-free-music
Outro Music: Jazzy Frenchy - Bensound.com - www.bensound.com/royalty-free-music
Previous Episode
Why Are You Grateful for Your IBD?
August 5, 2017
•18m
If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce.
4:45: Hear why Alison Rothbaum of Empowering Patients wouldn't give back these 2 things.
6:25: Brooke Abbott of The Crazy Creole Mommy Chronicles explains why IBD turned her life upside down in a positive way.
8:55: Christy Stone of Crohnie Bologna gives you the four-letter word that has defined her journey with IBD.
11:17: Megan Johnson of The Front Butt YouTuber explains why her IBD goes hand-in-hand with her accomplishments.
13:00: Ryan Stevens of Crohn’s Guy tells us what IBD has helped him cut out of his life.
14:00: What’s Your Trust Setting? http://aboutibd.com/2016/04/04/whats-your-trust-setting/
Featured Guests:
- Alison Rothbaum, Empowering Patients: https://twitter.com/Empoweringpts9
- Brooke Abbott, The Crazy Creole Mommy Chronicles: https://crazycreolemommy.com/
- Christy Stone, Crohnie Bologna: http://www.crohniebolognaibd.com/
- Megan Johnson, The Front Butt YouTuber: https://www.youtube.com/user/TheFrontButttuber
- Ryan Stevens, Crohn’s Guy: http://www.crohnsguy.com/
Find Amber J Tresca at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/ibdcrohns/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Intro Music: New Dawn - Bensound.com - www.bensound.com/royalty-free-music
Outro Music: Slow Motion - Bensound.com - www.bensound.com/royalty-free-music
Next Episode
Getting Stress Relief With Dr Tiffany Taft
September 26, 2017
•42m
How does stress affect IBD? We know that stress does not cause IBD, but it does affect the disease. How does IBD actually cause stress, and what can we do to balance our lives in such a way that it does not affect us in a negative way? I talk with my guest, Dr Taft, about how she advises patients with chronic diseases on relieving stress and the tips and tools that have worked for her and her patients in integrating a comprehensive stress relief program into daily life.
:28 The role of stress as it applies to IBD. (No, it's not "all in your head!")
1:40: Easy ways to get started on stress relief, even for people who aren't interested in it, and a reality check on how effective it is.
4:15: Some of the free apps that Dr Taft recommends for mindfulness and insomnia.
5:30: What is mindfulness?
7:45: How do I make mindfulness a habit?
11:22: But what does the research show about what stress relief techniques actually work for IBD?
13:52: Are there risks involved with trying stress relief techniques?
16:23: Stress doesn't cause IBD so why should stress relief factor into my treatment plan?
21:53: When do you need to look for more help when it comes to stress relief for IBD?
25:06: How treatment doesn't have to be long-term to be effective but could be more focused and short-term.
31:03: How do you find a therapist? How do you "try one out" to see if you are a fit? What should you look for in a therapist?
34:00: How do you know if you've found "Dr Right" or "Dr Wrong"?
Resources:
Does Stress Cause Inflammatory Bowel Disease?
https://www.verywell.com/does-stress-cause-inflammatory-bowel-disease-1942856
Do Most People With IBD Have A Mental Disorder?
https://www.verywell.com/do-people-with-ibd-have-mental-disorders-1943050
Is IBD Associated With Depression?
https://www.verywell.com/is-ibd-associated-with-depression-1942855
Featured Guest:
Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine
- Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html
- Facebook: https://www.facebook.com/opbmed/
- Twitter: https://twitter.com/OPBMed
- Oak Park Behavioral Medicine: http://www.opbmed.com/
- Dr Taft's Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th
Find Amber J Tresca at:
- Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
- Blog: http://aboutibd.com/
- Facebook: https://www.facebook.com/aboutibd/
- Twitter: https://twitter.com/aboutIBD
- Pinterest: https://www.pinterest.com/aboutibd/
- Instagram: https://www.instagram.com/about_IBD/
Credits: "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
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