Why Are You Grateful for Your IBD?

About IBD

08/05/17

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18m

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If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce.

4:45: Hear why Alison Rothbaum of Empowering Patients wouldn't give back these 2 things.

6:25: Brooke Abbott of The Crazy Creole Mommy Chronicles explains why IBD turned her life upside down in a positive way.

8:55: Christy Stone of Crohnie Bologna gives you the four-letter word that has defined her journey with IBD.

11:17: Megan Johnson of The Front Butt YouTuber explains why her IBD goes hand-in-hand with her accomplishments.

13:00: Ryan Stevens of Crohn’s Guy tells us what IBD has helped him cut out of his life.

14:00: What’s Your Trust Setting? http://aboutibd.com/2016/04/04/whats-your-trust-setting/

Featured Guests:

Alison Rothbaum, Empowering Patients: https://twitter.com/Empoweringpts9
Brooke Abbott, The Crazy Creole Mommy Chronicles: https://crazycreolemommy.com/
Christy Stone, Crohnie Bologna: http://www.crohniebolognaibd.com/
Megan Johnson, The Front Butt YouTuber: https://www.youtube.com/user/TheFrontButttuber
Ryan Stevens, Crohn’s Guy: http://www.crohnsguy.com/

Find Amber J Tresca at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/ibdcrohns/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Intro Music: New Dawn - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Slow Motion - Bensound.com - www.bensound.com/royalty-free-music

Previous Episode

Michael Tresca, Well Spouse and Amber's Husband

July 21, 2017

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61m

What's it like to watch your partner's ulcerative colitis become life-threatening and not be able to do anything about it? My husband, Mike, tells my story from his perspective, including how we met, what it was like to watch my health degrade, and all about our fairy tale wedding.

Featured Guest:

Michael Tresca

Twitter: https://twitter.com/worldofwelstar
Facebook: https://www.facebook.com/worldofwelstar/
Patreon: https://www.patreon.com/talien

Want to become a Lady or Lord of Glencoe, like Amber? Buy your plot of land here: https://www.highlandtitles.com

No, there are no utensils at Medieval Times. But you can get married there, like we did, or have your 15th anniversary party there, which we also did: http://www.medievaltimes.com

In loving memory of Anastasia, also known as Mary Queen of Scots and the Quiet Scottish Tailor.

Intro Music: Sunny - Bensound.com - www.bensound.com/royalty-free-music
Outro Music: Tenderness - Bensound.com - www.bensound.com/royalty-free-music

Next Episode

Health Advocacy With Brooke Abbott

August 30, 2017

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66m

Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government!

6:00: What's an IBD Elevator Speech? Hear Brooke's and then use the create your own.

7:15: Find out what happens when you meet with the staff in your representatives' office.

12:27: What should you know—and do—before you meet with someone at your representative's office?

12:53: What you do say when you call your representative's office to set up a meeting?

15:34: Do this if your representative will not meet with you.

22:07: What to write on a postcard you send to your representative.

28:50: Do our representatives pay attention to Twitter hashtags?

29:48: How https://www.govtrack.us/ and https://www.congress.gov/ can help you advocate!

35:30: Brooke always does this one thing before she goes into a meeting.

39:70: Learn which senator is also a gastroenterologist.

44:04: We talk about one of my Senators who I coincidentally met with about a week after we recorded this episode! (See my Facebook or Twitter feed for the photos!)

52:35: New segment on the show: Amber's Unsolicited Parenting Advice!

59:23: Listen to About IBD Episode 5 to learn why Brooke is Amber's "Alec Baldwin." Want to do more?

*Brooke and Amber attended the Digestive Disease National Coalition Public Policy Forum in 2017. You can find out more about their events and legislative events on their site: http://www.ddnc.org/

*Sign up for the Crohn's and Colitis Foundation Advocacy Network to get informed about advocacy goals: http://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/

*See if your legislator is on the Crohn's and Colitis Caucus. If not, write them and ask them to join! http://www.crohnscolitisfoundation.org/assets/pdfs/advocacy/2017-caucus-handout-1.pdf

*Don't know where to start? Get in touch with us—we're friendly! Featured Guest:

Brooke Abbott, The Crazy Creole Mommy Chronicles