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About IBD - GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie
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GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

About IBD

05/20/25

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52m

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In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work. Topics covered on this episode:
  • Personal journey with ulcerative colitis and diagnosis experience
  • Emotional and physical challenges of living with inflammatory bowel disease (IBD)
  • Importance of community support and connection for individuals with chronic illnesses
  • Founding and evolution of the organization "GetYourBellyOut"
  • Advocacy and awareness efforts for IBD and its impact on patients
  • Family dynamics and the effects of IBD on relationships
  • Role of social media in connecting individuals with IBD
  • Challenges of being a public figure in the IBD community
  • Importance of patient feedback in improving care and resources
  • Future goals and initiatives for expanding support and resources for those affected by IBD
Find GetYourBellyOut on: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at: Episode transcript and more information at: https://bit.ly/AIBD175 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Previous Episode

undefined - How Tech is Changing Gastroenterology
How Tech is Changing Gastroenterology

May 6, 2025

•

27m

Amber and gastroenterologist Dr Neil Parikh discuss technology's impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology. Find Neil D. Parikh, MD at: Find The Gut Doctor Podcast at: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at: Episode transcript and more information at: https://bit.ly/AIBD174 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Next Episode

undefined - Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures
Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures

June 3, 2025

•

40m

Jonathan Stewart, co-founder of Evergreen Adventures, a nonprofit focused on connecting the chronic illness community with outdoor activities, shares his journey with type one diabetes, ulcerative colitis, and sarcoidosis. Jonathan emphasizes the importance of staying active despite health challenges, describes the need for planning outdoor adventures, and encourages everyone to find joy in nature, no matter the circumstances. Concepts discussed on this episode:
  • Personal experiences with chronic illnesses, including ulcerative colitis and type one diabetes.
  • The journey of misdiagnosis and the challenges of managing chronic conditions.
  • The emotional impact of surgical decisions, such as colectomy and living with an ileostomy.
  • The importance of community support and advocacy for individuals with chronic illnesses.
  • The significance of restroom access and related laws for those with inflammatory bowel disease (IBD).
  • The role of outdoor activities in promoting physical and mental well-being for people with chronic conditions.
  • The founding and mission of Evergreen Adventures to facilitate outdoor experiences for the chronic illness community.
  • The complexities of living with multiple overlapping health conditions.
  • The importance of self-advocacy and collaboration with healthcare providers.
  • Encouragement to redefine personal adventures and find joy in small moments despite health challenges.
Information on Restroom Access Laws: Find Jonathan Stewart and EverGreen Adventures at: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at: Episode transcript and more information at: https://bit.ly/AIBD176 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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