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The Gastro Girl Podcast - Where Can I Find Resources For Eosinophilic Disorders?
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Where Can I Find Resources For Eosinophilic Disorders?

The Gastro Girl Podcast

10/16/23

19m

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Patients have told us they often feel lonely when they or a loved one has been diagnosed with a chronic gastrointestinal condition, such as an eosinophilic disorder like eosinophilic esophagitis (EoE). We invited Mary Jo Strobel, the Executive Director of The American Partnership for Eosinophilic Disorders (Apfed), to help address this major patient and caregiver stressor: "Where can I go for support and resources and connect with others going through similar health journeys?" Mary Jo explains all the resources Apfed has available to patients as well as parents navigating an eosinophilic disorder for their children. Check out the video version of this episode on our YouTube channel, @gastrogirl, for some help navigating Apfed's extensive website and features that you can find at apfed.org.

Previous Episode

Patients with chronic GI health conditions like inflammatory bowel disease (IBD) often have complex treatment plans that require multiple medications. They may also have other health conditions like heart, kidney or liver disease that require several medications in addition to the medications prescribed by their gastroenterologist. In this episode Gastroenterologist Dr. Tauseef Ali and Clinical Pharmacists Carrie Breeden and Sarah Elkoubysi from SSM Health St. Anthony Hospital in Oklahoma, explain the vital role clinical pharmacists play as members of the GI healthcare team. They provide eye-opening insight on how clinical pharmacists work with gastroenterologists and help patients fully understand their treatment options; the benefits and potential side effects of the medications they are being prescribed; and how these medications may interact with other lifestyle considerations, like diet, smoking and alcohol use.

Next Episode

When a doctor asks you "are you feeling better", what goes through your mind? How do you answer that question as a patient dealing with a chronic health condition? Is there a difference between what a doctor is looking for in an answer, and how a patient answers? We asked some of our previous patient advocate guests in this special compilation episode brought to you by Ardelyx, and the answers may surprise you. You may even relate to their struggle to not only define what better means for them, but how to communicate that to their healthcare provider.

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