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Dementia Researcher Vodcast - Rethinking Wandering in Care Homes
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Rethinking Wandering in Care Homes

Dementia Researcher Vodcast

04/10/26

53m

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In this episode of the Dementia Researcher Podcast Dr Anna Volkmer hosts a discussion exploring the complexities of wandering in dementia care.

Dr Bryony Waters-Harvey & Dr Emma Hock from The University of Sheffield and Conny McGowan from The Orders of St John Care Trust discuss their research and outcomes of the NIHR funded "FREEDEM study" - Reframing 'wandering' as a meaningful activity using realist synthesis and qualitative exploration

Takeaways

  • Wandering is often a meaningful activity for residents.
  • Individualised care plans are crucial for supporting residents.
  • Language matters in how we perceive wandering.
  • Positive risk-taking can enhance residents' quality of life.
  • Hydration and nutrition are important for wandering residents.
  • Research should focus on the positive aspects of wandering.
  • Care staff need training to support safe wandering.
  • Environmental factors significantly impact wandering behavior.
  • Residents should have access to outdoor spaces.
  • Future research should involve residents and their families

Access the toolkit and resources:

https://sites.google.com/sheffield.ac.uk/freedem/home

Strategies to support safe wandering in care homes for older adults – what works, for whom, and in which circumstances? A realist synthesis:

https://www.sciencedirect.com/science/article/pii/S0020748926000192

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A transcript of this show, links and show notes and profile on all our guests are available on our website at https://www.dementiaresearcher.nihr.ac.uk.

If you prefer to watch rather than listen, you will find a video version of this podcast on Apple Podcasts, YouTube, and on our website.

Leave us a tip:

https://dementia-researcher.captivate.fm/support

Follow us on social media:


Download and Register with our Community App:

https://www.onelink.to/dementiaresearcher

We gratefully acknowledge the support of our funders: Alzheimer’s Association, Race Against Dementia, Alzheimer’s Research UK, Alzheimer’s Society, and the National Institute for Health and Care Research.

The views and opinions expressed by guests in this podcast are their own and do not necessarily reflect those of the producers, funders, or sponsors.

Subscribe to our sister show 'Dementia Researcher The Blogs':

https://podfollow.com/dementia-researcher-blogs

Previous Episode

This episode of the Dementia Researcher Podcast continues our coverage from the AD PD Conference 2026 in Copenhagen, one of the largest international meetings focused on Alzheimer’s and Parkinson’s disease.

Hosted by Professor Louise Serpell, the conversation brings together Athina Grigoriou, Dr Lauren O’Neill, and Dr Sofie Let Frandsen, each sharing highlights from across the conference.

The discussion spans a wide range of topics, from the biological role of alpha synuclein and mitochondrial dysfunction, through to emerging therapeutic targets and the growing importance of biomarkers. There is a strong focus on how diseases are more complex and varied than once thought, with increasing attention on stratification, personalised medicine, and early detection.

Alongside the science, the episode also reflects on the importance of patient voices, collaboration across disciplines, and the value of sharing both positive and negative research findings.

This is Part Two of our AD PD 2026 reflections, offering a thoughtful look at where the field is heading next.

ADPD Conference Website - adpd.kenes.com/

Top Takeaways:

  • Alpha synuclein may have a normal physiological role, not just a pathological one
  • Mitochondrial dysfunction remains central in Parkinson’s mechanisms
  • Biomarkers are key for both early detection and patient stratification
  • Diseases like Parkinson’s and dementia are highly heterogeneous
  • Personalised medicine is becoming a realistic goal, not just an idea
  • New therapeutic targets beyond dopamine are emerging
  • Early stage and presymptomatic intervention is a major focus
  • Patient and carer perspectives remain underrepresented but essential
  • Collaboration and openness, including sharing negative results, are vital
  • More diverse populations are needed to validate biomarkers globally

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A transcript of this show, links and show notes and profile on all our guests are available on our website at https://www.dementiaresearcher.nihr.ac.uk.

If you prefer to watch rather than listen, you will find a video version of this podcast on Apple Podcasts, YouTube, and on our website.

Leave us a tip:

https://dementia-researcher.captivate.fm/support

Follow us on social media:


Download and Register with our Community App:

https://www.onelink.to/dementiaresearcher

We gratefully acknowledge the support of our funders: Alzheimer’s Association, Race Against Dementia, Alzheimer’s Research UK, Alzheimer’s Society, and the National Institute for Health and Care Research.

The views and opinions expressed by guests in this podcast are their own and do not necessarily reflect those of the producers, funders, or sponsors.

Subscribe to our sister show 'Dementia Researcher The Blogs':

https://podfollow.com/dementia-researc...

Extended reality is starting to find a real place in dementia research and care. In this episode, host Dr Byron Creese is joined by David de Jong-Bambagioni, Dr Emilie Brotherhood, and Alice Rowe to explore how virtual, augmented, and mixed reality tools are being used in practice.

Together, they discuss how XR is helping to standardise cognitive assessments, simulate clinical environments, and support earlier and more accurate diagnosis. The conversation also looks at how immersive tools are being used to build empathy, giving clinicians and carers a better sense of what it might feel like to live with dementia.

The panel share examples from their own work, including virtual simulations to distinguish delirium from dementia, and digital environments designed to capture subtle behavioural changes in conditions like frontotemporal dementia. These approaches are opening up new ways to study cognition, behaviour, and patient experience in more realistic and scalable settings.

This episode offers a practical look at where XR is already making a difference, and where it might go next.

In this episode:

  • How XR is being used in dementia research and care
  • Using immersive environments for assessment and empathy
  • Why co design and lived experience matter
  • Virtual, augmented, and mixed reality explained simply
  • Ethical risks and safeguards in vulnerable groups
  • How researchers are moving into digital health
  • Getting started with XR and finding collaborators
  • Inclusion, global perspectives, and reducing bias

--

A transcript of this show, links and show notes and profile on all our guests are available on our website at https://www.dementiaresearcher.nihr.ac.uk.

If you prefer to watch rather than listen, you will find a video version of this podcast on Apple Podcasts, YouTube, and on our website.

Leave us a tip:

https://dementia-researcher.captivate.fm/support

Follow us on social media:


Download and Register with our Community App:

https://www.onelink.to/dementiaresearcher

We gratefully acknowledge the support of our funders: Alzheimer’s Association, Race Against Dementia, Alzheimer’s Research UK, Alzheimer’s Society, and the National Institute for Health and Care Research.

The views and opinions expressed by guests in this podcast are their own and do not necessarily reflect those of the producers, funders, or sponsors.

Subscribe to our sister show 'Dementia Researcher The Blogs':

https://podfollow.com/dementia-researcher-blogs

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