Livestream Catch-up - Unlocking The Future Of MND A Journey Of Discovery And Hope
Dementia Researcher
06/24/23
•59m
About
Comments
Featured In
Dementia Researcher hosted a YouTube / Twitter Livestream on the 23rd June 2023 exploring Motor Neurone Disease (MND) and the remarkable advancements in research, in partnership with MND Scotland. We enjoyed the session so much, that we decided to release it as a bonus 'extra' podcast - so please ignore any references to links on the screen. Listen to learn more about the disease, the latest advancements in MND research, and specifically about the groundbreaking MND Smart Trial. This unique trial has garnered attention for its innovative approach and has shown promising potential in accelerating the discovery of effective treatments for MND. Furthermore, the event will delve into the impact of new investments in MND research, exploring how these resources are driving progress and propelling the quest for a cure. Resources mentioned during the recording: MND-SMART Website - https://mnd-smart.org/ MND Scotland Website - https://mndscotland.org.uk/ Jane Blog - https://www.dementiaresearcher.nihr.ac.uk/guest-blog-uk-motor-neuron-disease-research-institute/ *We can now confirm that the MND-SMART Study does sit on the NIHR Portfolio CPMS ID 44601 for any interested NHS sites. Adam Smith hosted the session, and was joined by: Dr Jane Haley, representing MND Scotland, brings her extensive expertise and compassionate approach to the discussion. As the Director of Research at MND Scotland, Dr. Haley has been instrumental in bringing the thoughts and priorities of people affected by MND into research and driving forward research initiatives and partnerships. Suvankar Pal is a Professor of Neurodegenerative Disorders and Clinical Trials at the University of Edinburgh. He is co-lead investigator of the innovative MND-SMART trial, the largest ever Phase 3 trial for people living with MND in the UK. Stevie Morris was diagnosed with MND in February 2021. He will bring insights to life, sharing the realities of living with the disease, highlighting the challenges faced by individuals living with MND and the importance of research in improving their quality of life. Don't miss this extraordinary opportunity to expand your knowledge, engage with leading experts, and gain insights into the pioneering MND-SMART Trial. Join us on the livestream as we embark on a journey to accelerate discovery and make a difference in the lives of those affected by MND.
Previous Episode
WHO Supporting Dementia Research Knowledge Exchange
June 12, 2023
•43m
This week, regular guest host and Dementia Researcher blogger Dr Anna Volkmer talks with representatives from the World Health Organisation, to learn about the brilliant new Global Dementia Observatory (GDO) Knowledge Exchange Platform. Listen to hear how researchers can contribute, and how the service is already making a difference. -- This week’s guests are the courageous Jim Mann and the incredible Laura Garcia Diaz. Jim lives in British Columbia, he is a Researcher, Author, and Volunteer Living with Alzheimer’s. Has an honorary Doctor of Laws degree in recognition of his effort on “countering negative stereotypes and promoting an inclusive society in which persons with dementia can make an active and meaningful contribution.” Jim was diagnosed in 2007 at the age of 58, and he has contributed to the project in a variety of ways. Laura supports management of the Knowledge Exchange Platform. She has five years of experience in knowledge translation and mobilisation in the area of dementia, having previously worked for the Alzheimer Society of Canada supporting the developing and dissemination of dementia resources. In addition to consulting for the WHO Laura is in the fourth year of a dual degree program at McMaster University, Canada, in which she is completing a Master of Science Occupational Therapy and a PhD in Rehabilitation Sciences degrees in concurrently. Her research focuses on the evaluation of a Canadian dementia-inclusive community initiative. -- The Global Dementia Observatory (GDO) Knowledge Exchange Platform, also known as the GDO KE Platform, is a resource hub that facilitates the implementation of the Global action plan on the public health response to dementia 2017-2025. It offers various resources, such as policies, guidelines, case studies, and examples of good practices, which are freely available for stakeholders to share and learn from. Users can submit resources, which are then filtered based on strategic action areas, country-specific information, and resource types. A rigorous review process, involving peer reviewers, a Focus Group of individuals with lived experience of dementia, and the World Health Organization (WHO) Secretariat, ensures the quality and adherence to good practice criteria. Users can leave comments and ratings to foster discussion and improvement. The GDO KE Platform works alongside the GDO data portal, which gathers and disseminates data from Member States on 35 key dementia indicators, aiding evidence-based service planning and policy strengthening. The GDO serves as the monitoring and accountability mechanism for the Global action plan and supports the data portal. Access to the GDO KE Platform and the GDO data portal is available for interested individuals. -- Essential Links: GDO KEP – http://www.globaldementia.org A blueprint for dementia research - https://bit.ly/43wbtfq GDO KE peer reviewer application - https://bit.ly/3XfDKVj GDO resource submission form - https://bit.ly/42yK0Iv Global action plan 2017 – 2025 - https://bit.ly/3MZiRZt -- Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel – https://youtu.be/UWG363dt20s -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.
Next Episode
AAIC Preview 2023
June 26, 2023
•38m
Adam Smith chats with Dr Claire Sexton, Senior Director, Scientific Programs and Outreach from the Alzheimer’s Association. Discussing this year’s Alzheimer’s Association International Conference (AAIC) 16 – 20 July. -- Taking place in-person in Amsterdam and online - the world’s leading basic scientists, clinical researchers, early career investigators, clinicians and the care research community will share breaking research discoveries that will lead to methods of prevention and treatment and improvements in diagnosis for Alzheimer’s disease. In this exciting edition, we will be giving you an exclusive sneak peek into one of the most highly anticipated events in dementia research conference calendar. Join us as we delve into how you can attend, the scientific programme, extra events and just what the AAIC will deliver this year. With leading experts, visionary thinkers, and research pioneers gathering under one roof, this conference promises to not only showcase groundbreaking discoveries, but also be a place where you will get careers support, and unrivalled networking opportunities. -- To book your place visit - https://aaic.alz.org Join ISTAART to get a free online ticket – https://istaart.alz.org -- Note: Students worldwide and researchers from Low- and Middle-Income Countries are now eligible for free ISTAART Membership (and ISTAART members can attend the AAIC Online for Free) - Become a member, then register for the conference if you can't make it in-person. Full biographies on all our guests and a transcript can be found on our website www.dementiaresearcher.nihr.ac.uk -- Register to attend the Alzheimer's Society, Alzheimer's Research UK, Dementias Platform UK and UK Dementia Research Institute Networking event: https://www.smartsurvey.co.uk/s/U2N2WG/ -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.
If you like this episode you’ll love
Promoted