
Improving Dementia Care Journeys
Dementia Researcher
11/27/23
•41m
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This episode of the Dementia Researcher Podcast is hosted by Dr. Annalise Rahman-Filipiak and features Diane Ty and Rajiv Ahuja, authors of a pivotal report from the Milken Institute - Guiding the Care Journey. In this show we discuss the report, its importance an findings - addressing critical challenges and presenting innovative solutions for dementia care in the United States, with a particular focus on the role of the care navigators. While the report primarily addresses the U.S. context, its recommendations are deemed relevant globally, and the discussion aims to shed light on findings related to improving care for people living with dementia and their families, wherever you are. -- Download the report: https://bit.ly/3uEgvtq Visit the Milken website: https://milkeninstitute.org/ -- About the guests: Diane Ty is the Senior Director of the Milken Institute Future of Aging overseeing its work at the intersection of healthy longevity and financial security. She leads its Alliance to Improve Dementia Care and other multisector programmatic efforts that promote policy, practice, and systems change in a life course approach to aging. Rajiv Ahuja is the Associate Director of the Milken Institute Future Ageing. His work focuses on aging policies and programs that support healthy longevity. Rajiv spearheads efforts to incentivize policy, business, and technology-based approaches that promote brain health, combat stigma, reduce costs, and bridge health and economic disparities. Dr Annalise Rahman-Filipiak is an Assistant Professor, Clinical Neuropsychologist at University of Michigan. Annalise broadly studies racial-ethnic disparities in dementia diagnosis and treatment, as well as non-pharmacologic treatments for Alzheimer’s disease and related dementias. Her recent work has focused on disclosure of imaging and fluid-based biomarkers to diverse audiences, including cognitively healthy older adults and those with impairment -- Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than watch, you’ll find a video version of this podcast with full captions on YouTube and our website: https://youtu.be/rvjpPsdIyQc -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ @MilkenInstitute #dementiacare #dementiaresearch #CareNavigator #dementia #alzheimerdisease #DemetiaCare,
Previous Episode

A Closer Look At Lecanemab Donanemab And Amyloid
November 13, 2023
•54m
In this podcast Dr Anna Volkmer, convenes a panel of world-renowned experts from University College London. They discuss the discovery of amyloid and its role in Alzheimer’s Disease and take an in-depth look into the latest developments surrounding Lecanemab and Donanemab, monoclonal antibodies (mAbs) as a treatment and Gene Silencing. This week’s guests are Professor Sir John Hardy, Geneticist and trailblazer in neurodegenerative disease research, Professor Nick Fox, Neurologist, and eminent figure in the fields of neuroimaging and clinical neuroscience, and Dr Cath Mummery, Neurologist and leading light in cognitive disorders and clinical trials. -- Listeners can expect: 1. 🧠 - Discussion on new dementia drugs Lecanemab and Donanemab. 2. 🔬 - Insights on the science behind these treatments, the story behind the discovery of amyloid and familial Alzheimer’s - Carol Jennings Story. 3. ❌🤔 - Clarification of misconceptions about dementia therapies. 4. 🩺💊 - Information on the impact of these drugs on patients and clinical practice. 5. 🌟🔜 - A look at the future of dementia research, including gene-silencing therapies. -- NIA statement on report of lecanemab reducing cognitive decline in Alzheimer’s clinical trial: https://www.nia.nih.gov/news/nia-statement-report-lecanemab-reducing-cognitive-decline-alzheimers-clinical-trial NIA statement on donanemab results: More Alzheimer’s research progress: https://www.nia.nih.gov/news/nia-statement-donanemab-results-more-alzheimers-research-progress Alzheimer's Society Information on Donanemab: https://www.alzheimers.org.uk/blog/what-is-donanemab-alzheimers-drug Alzheimer's Society Information on Lebanemab: https://www.alzheimers.org.uk/blog/lecanemab-new-drug-early-stage-alzheimers-disease Alzheimer's Association Info on Research & Risks https://bit.ly/3QxH3Ei -- Full biographies on all our guests and a transcript can be found on our website http://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel. https://youtu.be/Kl8rzDSIwxM -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.
Next Episode

Harmonising Minds Dementia Friendly Music & Arts
December 11, 2023
•41m
In this episode of the Dementia Researcher podcast, guest host Dr Robyn Dowlen leads a fascinating exploration of the intersection of music, arts, and inclusivity in the context of dementia. This episode features a trio of remarkable guests who have been instrumental in integrating dementia-friendly initiatives into the arts. Our guests are Holly Marland, Former Churchill Fellow and Music Therapist and dedicated advocate for community music projects; Dr Andy Northcott from the University of West London, who brings an academic perspective on the impact of arts and how to make events more accessible; and Liv McLennan from Sounds Better Community Interest Company, a pioneer in using music as a bridge to memory and joy. The episode explores the inspiring stories behind our guests’ projects, ranging from festivals to operas, highlighting how they're creating spaces where every note and performance opens doors to accessibility and understanding. Robyn, a researcher at the University of Manchester, also shares insights from her work on capturing the musical experiences of people with dementia. This episode is not just about the arts, but also about how these initiatives foster community, inclusivity, and a deeper understanding of dementia's impact on lives. Tune in for an enlightening discussion that promises to be as informative as it is inspiring, showcasing the powerful role of arts in enhancing the lives of those living with dementia. -- Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than watch, you’ll find a video version of this podcast with full captions on YouTube and our website: https://youtu.be/p09EwnJ5lYk -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on Social Media: www.instagram.com/dementia_researcher/ www.facebook.com/Dementia.Researcher/ #dementiacare #dementiaresearch #Arts #dementia #alzheimerdisease #DementiaCare #MusicandDementia #Opera
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