Involving people with Dementia in Research
Dementia Research Charity Chatathon
12/09/22
•31m
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Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Dr Catherine Quinn, Associate Professor in the Centre for Applied Dementia Studies at University of Bradford; Dr Catherine Charlwood, IDEAL Research Translation & Impact Manager at University of Exeter and Nikita Sharma, Postgraduate student at Swami Vivekanand Subharti University.
Dr Catherine Quinn - My research focuses improving the quality of life of those affected by dementia. First, through gaining a better understanding of the experiences of those affected by dementia and the factors that affect their quality of life. Second, by developing interventions to improve the quality of life of those affected by dementia. I teach modules on post-diagnostic support in dementia and am also a Fellow of the Wolfson Centre for Applied Health Care Research and a member of the NIHR Applied Research Collaboration Yorkshire and Humber.
Dr Catherine Charlwood - Drawing on an unusual background of three degrees in literature, I work for the IDEAL programme as Research Translation and Impact Manager. My role exists to help promote our findings to various different stakeholders from our key beneficiaries of people with dementia and carers, through to practitioners and policymakers. It's an enormous privilege to work closely on the PPIE elements of IDEAL and one of my proudest achievements is the Living with Dementia Toolkit.
Nikita Sharma - Currently pursuing her MD Naturopathy & working on reviews & exploring the “Effect of Meditation on amygdala in healthy & among Alzheimer’s disease patients”.
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The 2022 Dementia Research Charity Chatathon LIVE was held on Friday 2nd December - A non-stop 12.5 hours livestream hosted by Adam Smith interviewing 68 Dementia Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia. Raising money for research and providing insights into the latest research taking place across the UK and Worldwide.
This year we are raising money for four amazing charities who all fund research - Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia and The Lewy Body Society.
For more information and to donate visit http://www.chatathon.uk
Previous Episode
Meet the Leading UK Dementia Research Charities
December 9, 2022
•28m
Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Jacqueline Cannon, CEO of The Lewy Body Society, Bridget Barker, CEO of Race Against Dementia, Dr Sara Imarisio, Head of Strategic Initiatives at Alzheimer's Research UK and Katherine Gray, Research Communications Manager at Alzheimer's Society.
Jacqueline Cannon - I'm the CEO of The Lewy Body Society. As a small charity, everyone has more than one job, my role is varied and involves but not limited to: Book keeping; website updates; fulfilment of orders from the society’s online shop; social media updates; taking calls from carers; responding to emails; sending out information packs; managing research grant applications; arranging and taking part in zoom events. We're proud to have a dedicated community of fundraisers and researchers, and bringing them together to support people living with Lewy Bodies is very important.
Bridget Barker - I run the charity started by Formula 1 World Champion Sir Jackie Stewart. On I day-to-day basis this includes ensuring there is appropriate governance, fundraising, marketing, arranging various events and using the charity’s money to support the RAD Fellows’ Development Programme as well as investing in innovative projects to accelerate research into dementia. My maternal grandmother had dementia, and I share in Sir Jackie's passion to find new ways to beat dementia, learning from other industries who are able to bring rapid innovation and new ideas.
Dr Sara Imarisio - I'm the Head of Strategic Initiatives at Alzheimer’s Research UK. I am responsible for overseeing initiatives such as the charity’s Drug Discovery Alliance, the UK Dementia Research Institute, and the Brains for Dementia Research. Prior to joining Alzheimer’s Research UK, I was a postdoc in Cambridge affiliated to Prof David Rubinsztein’s lab, screening for modifiers of neurodegenerative diseases caused by aggregate-prone proteins. I completed my PhD in Italy, working on the characterisation of a protein involved in the latest stages of the cell cycle and necessary for the correct development of the brain.
Katherine Gray - I work in the wonderful Research Communications team at Alzheimer’s Society sharing research updates to the Society’s donors and supporters, sharing research findings through the Society’s channels and in the media. Talking directly to the dementia research community about how the Society can support you.
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The 2022 Dementia Research Charity Chatathon LIVE was held on Friday 2nd December - A non-stop 12.5 hours livestream hosted by Adam Smith interviewing 68 Dementia Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia. Raising money for research and providing insights into the latest research taking place across the UK and Worldwide.
This year we are raising money for four amazing charities who all fund research - Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia and The Lewy Body Society.
For more information and to donate visit http://www.chatathon.uk
Next Episode
Caring Dementia Care in Care Homes
December 9, 2022
•30m
Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Professor Claire Surr, Professor of Dementia Studies at Leeds Beckett University and Dr Victoria Shepherd, Senior Research Fellow, Cardiff University.
Professor Claire Surr - I am Director of the Centre for Dementia Research, a cross-University research Centre dedicated to supporting multi-disciplinary applied dementia research. I have led a wide range of dementia research programmes funded by major funders including the National Institute for Health Research and the Alzheimer's Society. I work in dementia care and services research. Most recently my focus has been on dementia and comorbidity, care homes and workforce education and training.
Dr Victoria Shepherd - I lead an interdisciplinary programme of research exploring the ethical and methodological issues around research involving adults with impaired capacity to consent, including people living with dementia. This includes the recent development of the NIHR INCLUDE Impaired Capacity to Consent Framework to help researchers to design trials that are more inclusive of people who may experience challenges around consent. Alongside this, I have a broad portfolio of methodological research including care home studies such as COS COVID PCARE which established the core outcomes to be measured in trials evaluating interventions to prevent COVID-19 in care homes.
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The 2022 Dementia Research Charity Chatathon LIVE was held on Friday 2nd December - A non-stop 12.5 hours livestream hosted by Adam Smith interviewing 68 Dementia Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia. Raising money for research and providing insights into the latest research taking place across the UK and Worldwide.
This year we are raising money for four amazing charities who all fund research - Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia and The Lewy Body Society.
For more information and to donate visit http://www.chatathon.uk
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