All about Frontotemporal dementia
Dementia Research Charity Chatathon
01/29/23
•47m
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On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Imogen Swift Research Assistant, UK Dementia Research Institute at UCL. Imogen is involved in developing novel fluid biomarkers for frontotemporal dementia (FTD). With a particular focus on developing CSF and blood-based markers for genetic FTD caused by GRN mutations. Imogen works within the Fluid Biomarker team at the Dementia Research Institute with Dr Amanda Heslegrave and the FTD UCL team at the Dementia Research Centre with Jon Rohrer. She is also involved in managing the biobank for a number of dementia studies including GENFI which involves coordinating sample collection from 27 sites across the world - @immy_swift
Dr Lucy Russell Research Fellow, Dementia Research Centre, University College London. Lucy works with Dr Rohrer on a project called GENFI that aims to follow individuals with a genetic form of FTD. Her current role is to act as the FTD Prevention Initiative (FPI) co-ordinator, working with GENFI and other large cohort studies across the world as well as pharmaceutical companies and consortium groups to get as many clinical trials up and running as soon as possible. Additionally Lucy is involved in recruiting individuals to the one (and only) FTD trial currently running in the UK. Her specific interests and PhD looked at social interactions with individuals with Dementia, as well as trying to developing novel eye-tracking tasks that are more sensitive to change earlier in the disease course than what current assessments currently are able to do.
Dr Martina Bocchetta Senior Research Fellow, Dementia Research Centre, UCL. With funding from Alzheimer's Society, Martina investigates the changes that occur in the brain in the genetic forms of FTD. Using different neuroimaging techniques to measure these changes on MRIs, hoping to identify markers of disease onset and progression to be used in clinical trials - @bocchettaM
Mica Clarke PhD Candidate, University College London. Mica is investigating new ways to track the progression of disease in FTD. She is using a type of brain imaging to do this called PET imaging (positron emission tomography), which allows us to look at certain proteins in the brain via brain scans that might be involved in the disease process - @mtmclarke
Dr Aitana Sogorb Esteve Postdoctoral Research Fellow, UK Dementia Research Institute at UCL Atina is looking for novel biomarkers and biomarker panels to diagnose the different aspects of FTD - @aitanasogorb
Previous Episode
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Clarissa Giebel Research Fellow, University of Liverpool. Clarissa's research is looks at how people with dementia can be supported to live independently at home, and how we can address inequalities that might hinder them from getting the care they need. She has also recently been researching the impact of the Coronavirus pandemic on people living with dementia, and issues with social care - @clarissagiebel
Sarah Wallcook PhD Student, Karolinska Institutet, Sweden. Sarah's research focuses on how everyday technology shapes, facilitates and hinders the everyday life of people with dementia, with a particular interest in rural contexts. Her patient and pubic involvement activities work in partnership with the Focus on Dementia Network group in Cumbria and are aimed at complementing and supporting the wider participatory ecosystem of the rural area in which they take place - @sarah_wallcock ( Updated Jan 2023 - Now Dr Sarah Wallcook ).
Monica Leverton PhD Student, Division of Psychiatry, University College London. Monica's PhD research uses an ethnographic approach to explore the role of homecare workers in supporting independence at home in people living with dementia. Her work has also looks at the training and support needs of homecare workers who provide care to people living with dementia, to inform a training intervention for the homecare sector - @monicaleverton (Updated Jan 2023 - Now Dr Monica Leverton at Kin's College London)
Next Episode
Making Care Homes great places, providing great care & great homes
February 4, 2023
•22m
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Leah Hewer-Richards, PhD Student, University of Southampton - I am researching the impact of the COVID-19 pandemic on the provision of continence care in residential care homes for people with a dementia. I will be looking at how fears around contamination may have changed continence care practices, particularly in relation to restricted access to PPE. I will also be looking at stigma associated with continence care and working within a care home during the pandemic - @leahlearns_
Dr Rachel Daly, Professional and Practice Development Facilitator, Dementia UK - I am leading an Appreciative Inquiry study to understand the everyday decisions that people living with dementia and communication difficulties make and share in care homes. Also how and with whom they share those decisions. Participants (people living with dementia and staff and family care partners) designed and implemented interventions to maintain and improve shared everyday decision-making practice - @dementiaventure
Dr Alys Griffiths, Senior Research Fellow, Leeds Beckett University (now at University of Liverpool) I do care homes research, including a secondment as an embedded researcher in a care home one day per week. I'm interested in outcome measures, from the perspective of their development and validation, and ensuring their appropriate use, allowing people with dementia the chance to participate in research wherever possible - @alysgriffiths_
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