Tourette syndrome community and research - with Dr. Daniel P. Jones
Beyond 6 Seconds: Neurodiversity stories from neurodivergent people
05/10/25
•37m
About
Comments
Featured In
Dr. Daniel P. Jones is a Creative Practitioner, Disability Scholar, and Postdoctoral Research Associate at the University of Sheffield in the UK. Daniel specializes in inclusive research methodologies, focusing on the embodied experiences of public spaces, kinship, and solidarity within Tourette syndrome communities. As someone who has lived experience of Tourette syndrome himself, he has been actively engaged in community facilitation and Tourette syndrome activism in the UK for over a decade.
During this episode, you will hear Daniel talk about:
- How he realized he had Tourette syndrome – years after he had been diagnosed
- What was it like for him growing up with Tourette's in a religious household
- How his PhD thesis research focuses on the experiences that adults with Tourette's have in both public physical spaces and digital spaces
- What he learned about how the experiences of BIPOC and queer people with Tourette's are different in these spaces
- His work to lead and promote inclusive research
Follow Daniel on Bluesky: @danielpjones.bsky.social Visit Daniel's website: DanielPJones.com
Watch the video of this interview on YouTube.
Follow the Beyond 6 Seconds podcast in your favorite podcast player.
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.
Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*
Previous Episode
Dyslexia advocacy in Nigeria – with Oladoyin Idowu
April 28, 2025
•34m
Content warning: This episode mentions physical and verbal abuse in school, suicidal ideation and a suicide attempt, and drug use.
Oladoyin Idowu is a pioneering dyslexia advocate and mental health professional dedicated to bridging the gap between neurodiversity, education, and mental well-being. Growing up in Nigeria with undiagnosed dyslexia, she experienced firsthand the challenges of navigating an education system that was not designed for neurodivergent learners. In 2016, she founded One Word Africa Foundation, becoming one of Nigeria's foremost voices in dyslexia awareness and support.
During this episode, you will hear Oladoyin talk about:
- What her life was like growing up with undiagnosed dyslexia in Nigeria
- How Google helped her realize that she had dyslexia as an adult in 2015
- The different issues that she has to deal with because of her dyslexia
- The story behind how she founded the One Word Africa Foundation in 2016
- How her experience with higher education changed after she went back to school after her dyslexia diagnosis
- The type of work that the One Word Africa Foundation does for people with dyslexia and their loved ones
- The connections that she has noticed between dyslexia and mental health
Connect with Oladoyin on LinkedIn or follow One Word Africa on Instagram, Facebook or LinkedIn.
Watch the video of this interview on YouTube.
Follow the Beyond 6 Seconds podcast in your favorite podcast player.
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.
Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*
Next Episode
Autism Inclusion in the Christian Church – with Sunita Theiss
May 26, 2025
•34m
CW: Eating disorder, death of a parent.
Sunita Theiss is an autistic, ADHD and PDA* parent, writer, and advocate. A second-generation Indian American, she has a rich background in communications, marketing, and storytelling, and has found several ways to support and encourage families raising neurodivergent kids.
Sunita is passionate about creating opportunities for culturally responsive support in a way that helps families honor both their values and their children's needs. She is a regular contributor to PDA North America's Insights and Key Ministry's blog, and her writing has been featured in many publications, including Business Insider and Christianity Today.
*PDA is most often defined as Pathological Demand Avoidance or Pervasive Drive for Autonomy.
During this episode, you will hear Sunita talk about:
- Discovering her own neurodivergence after she had her children
- Her experience growing up as an undiagnosed neurodivergent kid in a South Asian family in the U.S. state of Georgia
- How raising her children has affected how she views her neurodivergence
- Growing up in the Hindu community and living as a Christian as an adult
- Writing about her experience in church as a neurodivergent parent of neurodivergent children
- How "low demand parenting" works for her and her family
Join Sunita's writing workshop and/or coaching services:
- A Story Only You Can Tell: A Writing Gathering for Parents of Neurodivergent Kids – use the code CAROLYN for $10 off Sunita's writing workshop (scheduled for 6/26/2025)
- Low Demand Parenting Coaching - use the code SUNITA15 for $15 off
Read Sunita's writing at sunitatheiss.com/writing, on Instagram @sunitatheiss and on Substack.
The book that Sunita mentions in this episode is called "The Myth of Good Christian Parenting" by Kelsey McGinnis and Marissa Burt.
Watch the video of this interview on YouTube.
Follow the Beyond 6 Seconds podcast in your favorite podcast player.
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.
Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*
If you like this episode you’ll love
Promoted