Tourette Syndrome advocacy – with Jhonelle Bean
Beyond 6 Seconds: Neurodiversity stories from neurodivergent people
10/02/23
•29m
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Jhonelle Bean is a 28-year-old disability advocate living with Tourette Syndrome and PTSD. Jhonelle shares her experience with Tourette Syndrome through social media to educate others and help destigmatize the condition, especially within communities of color. She has also created a community called "For The Advocates," where other disability advocates can find a place to relate and get support and resources from each other.
During this episode, you will hear Jhonelle talk about:
- Her first tics in childhood and adolescence, and the reactions of the people around her
- Why it took so long for her to get a Tourette's diagnosis
- How she decided to become a Tourette's advocate online
- Some common misconceptions about Tourette's
- Her advocacy about Tourette's and communities of color
- Why she created the "For The Advocates" community
Follow Jhonelle on Facebook, Instagram, TikTok, YouTube and Twitter. Follow For The Advocates on Instagram.
Watch the video of this interview on YouTube.
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*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*
Previous Episode
Autistic and dyspraxic actor Ross K. Foad
September 18, 2023
•19m
Ross K. Foad is a professional actor and voice artist in the United Kingdom. A second generation actor, he was just 18 months old when he made his acting debut, but would get his proper start in acting on the London comedy circuit as a stand up comic and sketch comic actor. He is autistic and dyspraxic, and in 2017 was one of only 30 disabled actors chosen by the BBC for their Class Act Training Scheme, an initiative designed to help increase disabled representation on screen.
During this episode, you will hear Ross talk about:
- What life was like for him growing up autistic and dyspraxic
- The biggest challenges he faces as a neurodivergent actor
- His love of voice acting
- His experience in the BBC Class Act Training Scheme working with mentors and other disabled actors
To find out more about Ross and his work, you can find him on Twitter and YouTube.
This episode of Beyond 6 Seconds is sponsored by Dystinct Magazine. Dystinct Magazine publishes evidence-based content from specialists in an easy-to-understand format and inspirational stories of everyday role models highlighting how they cope with the struggles and hardships that learning disabilities bring. Dystinct Magazine also offers various opportunities for children to participate in its publication. They have opportunities for young journalists, designers, and illustrators. Check out their website at dystinct.org or contact Zahra (the founder) at zahra@dystinct.org to see how your children or students with learning disabilities can get involved.
Watch the video of this interview on YouTube.
Follow the Beyond 6 Seconds podcast in your favorite podcast player.
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.
Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*
Next Episode
Creating an inclusive world through dance – with Marisa Hamamoto
October 16, 2023
•58m
Content note: This episode contains mentions of sexual assault, describes a stroke and recovery, and has occasional swearing.
Marisa Hamamoto is the first professional dancer to be named as one of People Magazine's "Women Changing the World." Her award-winning nonprofit and professional dance company, Infinite Flow, employs disabled and nondisabled artists with a mission to foster inclusion. Marisa is also a stroke survivor who is autistic and has PTSD.
During this episode, you will hear Marisa talk about:
- Her lifelong passion for dancing, despite facing bias and exclusion within the dance world
- How a heartbreaking rejection by her dance school classmates inspired her to make a boldly inclusive decision, and showed her how small actions can lead to big change
- The life-changing stroke that paralyzed her for months, and the long process of healing from the physical and mental trauma that followed
- How a salsa dance performance in Japan rekindled her passion and confidence as a dancer
- Her dancing partnership with a disabled athlete that inspired her to found Infinite Flow
- How she was diagnosed with PTSD and autism as an adult – and reflecting on her life, now knowing that she's autistic
You can also find out more about Marisa on her website MarisaHamamoto.com and connect with her on LinkedIn and Instagram.
Watch Infinite Flow Dance performances at InfiniteFlowDance.org/portfolio.
Sign up for Marisa's newsletter and the Infinite Flow newsletter.
Watch the video of this interview on YouTube.
Follow the Beyond 6 Seconds podcast in your favorite podcast player.
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.
Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*
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