Epilepsy advocacy
Beyond 6 Seconds: Neurodiversity stories from neurodivergent people
09/30/24
•21m
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Amee is a dedicated health care provider known for her expertise and compassionate care. Beyond her professional achievements, she is a passionate mental health advocate and openly shares her personal journey living with epilepsy on her Instagram @behindthebindis. She is a powerful voice for those who feel they cannot speak up for themselves, working to raise awareness and foster understanding about mental health and invisible illnesses in the South Asian community and beyond.
During this episode, you will hear Amee talk about:
- What was it like growing up with epilepsy, but not really talking about it
- How her experience with epilepsy changed from childhood to adulthood
- The hospital stay that prompted her to disclose her epilepsy to her closest friends
- What inspired her to discuss her epilepsy publicly on her social media – and the meaning of "behind the bindis"
Follow Amee on Instagram @behindthebindis to learn more about her epilepsy advocacy.
Watch the video of this interview on YouTube.
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Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*
Previous Episode
Autistic-led autism research - with Dr. Kana Grace
September 16, 2024
•29m
Dr. Kana Grace is a research psychologist, advocate, Specialist Mentor, and educator, specializing in the mental and physical health of neurodivergent people. Currently, Kana is an Honorary Research Fellow at the Centre for Research in Autism and Education (CRAE) at the Institute of Education, University College London (UCL), where she completed her PhD.
Kana has lived experiences with autism, ADHD, dyslexia, Tourette syndrome, dyspraxia, hypermobility Ehlers-Danlos syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS).
She founded Valtameri (which means ocean in Finnish) to advocate for and support neurodivergent people and their families, based in Okinawa, Japan. Through Valtameri, she offers one-to-one support for neurodivergent people of all ages. She also gives talks and public lectures to deepen the understanding of neurodivergence in Okinawa Japan, and all over the world.
Fluent in both English and Japanese, Kana bridges cultures in her extensive work.
During this episode, you will hear Kana talk about:
- How she discovered she is neurodivergent while at University
- What her life was like before she was diagnosed
- Why she decided to focus her PhD on the study of loneliness in autistic adults
- The importance of involving autistic researchers in autism research
- Her experience working in academia
- Her observations about how autism and neurodivergence is viewed in Japan
- The goals she wants to achieve with her research
Find out more about Kana and her work on her Linktree.
Watch the video of this interview on YouTube.
Follow the Beyond 6 Seconds podcast in your favorite podcast player.
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.
Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*
Next Episode
Work experience in an autism employment program -- with Jack Pabich
October 14, 2024
•37m
Jack Pabich is a Quality Assurance Support Analyst who found his current job through an autism employment program run by CAI Neurodiverse Solutions. He is responsible for processing requests of potential conflicts of interest, ensuring parties are correctly assigned to the location within the database, and rearranging information to improve database efficiency. Jack's attention to detail is his biggest strength and he uses it to proactively streamline tasks. In his free time, he enjoys being active with various sporting activities and spending time with friends.
During this episode, you will hear Jack talk about:
- How the autism employment program helped him find work after college
- The work he does at his current employer, and how it leverages his strengths and helps him learn new things and grow as a leader
- His working relationships with his coworkers and managers
- The type of work he wants to do in the future
Watch the video of this interview on YouTube.
Follow the Beyond 6 Seconds podcast in your favorite podcast player.
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.
Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*
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