Coming of age with Crouzon syndrome – with Ariel Henley
Beyond 6 Seconds: Neurodiversity stories from neurodivergent people
03/28/22
•36m
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As a child, Ariel Henley's face was compared to a Picasso painting.
This horrifying comment didn't come from a schoolyard bully. It was written in a magazine article about Ariel and her experience growing up with Crouzon syndrome, a congenital condition that affects the shape of her face.
From that day forward, Ariel was determined to tell her story. She transformed that insult into the title of her new memoir, "A Face for Picasso."
Tune into my latest episode to hear Ariel talk about her book, as well as:
- Her story of growing up with Crouzon syndrome
- The pain and harassment she faced
- Finding self-acceptance
- Her advocacy for face equality and authentic media representation of people with facial differences and other disabilities
To find out more about Ariel and her work, visit her website at www.arielhenley.com and order her memoir, "A Face for Picasso."
Watch the video of this interview on YouTube!
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Click here for the episode transcript.
This episode also features a promo of the Art Heals All Wounds podcast.
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*
Previous Episode
Tourette Syndrome in the public eye – with Seamus Evans
March 14, 2022
•44m
At his first job as a TV host, Seamus Evans disclosed his Tourette Syndrome. That revelation almost ended his dream career.
Fortunately Seamus didn't lose his job. In fact, he spent the next 13 years in his dream career, entertaining his fellow Australians as a TV and radio personality. Now he is an ambassador for Tourette Syndrome Association Australia and a keynote speaker who shares his story to inspire and encourage kids and adults with Tourette's.
In this episode, Seamus talks about his experience growing up with Tourette's, how he taught himself to transform his tics (both on and off the air), how his sense of humor helps him in social situations, and why he encourages everyone to embrace their flaws – because in Seamus' words, "normal is boring."
To learn more about Seamus and his work, you can find him at the following links below:
Watch the video of this interview on YouTube!
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes!
Click here for the episode transcript.
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*
Next Episode
Autistic is a powerful word
April 2, 2022
•9m
For World Autism Day, I've recorded a solo episode where I explain how my thinking has evolved about the word "autistic" – how I was once scared of it, how I overcame my outdated views and biases associated with it, and why now I consider "autistic" to be a powerful word that I'm proud to claim as part of my identity. I share why I prefer identity-first language over person-first language when describing my autistic self, and why we should let individuals choose how they want to describe themselves. What other topics should I discuss on a solo episode? If you have questions, comments or suggestions, please let me know! Get in touch through my website www.beyond6seconds.net/contact/ or on social media.
Watch the video of this interview on YouTube!
Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes!
Click here for the episode transcript.
*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*
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