You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD
About IBD
06/27/23
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Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds.
Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions?
Melodie Narain-Blackwell, founder of Color of Crohn's and Chronic Illness, discusses her Crohn's disease journey and how it led her to become a voice for the IBD community. She tells us why outreach to minority groups sometimes fails, how she approaches patient education, her ideas on giving patients improved access to care, and how motherhood affects her disease journey.
Find Color of Crohn's and Chronic Illness at COCCI.org, Facebook, Twitter, and Instagram.
Find Melodie Narain-Blackwell at Facebook, Twitter, and Instagram.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits:
Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.
Theme music, mix, and sound design is by Cooney Studio.
Previous Episode
In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD.
Why is there a lack of people of diverse backgrounds who live with Crohn's disease or ulcerative colitis represented in clinical trials? Why are there so many barriers for people of color in accessing IBD care?
Dr Aline Charabaty, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital and founder of Monday Night IBD on Twitter discusses the scope of inequalities in research and access to care in IBD. What's more: she offers solutions that can be used to address disparities.
Find Aline Charabaty, MD on Facebook, Twitter, Instagram, and at Monday Night IBD.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits:
Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.
Theme music, mix, and sound design is by Cooney Studio.
Next Episode
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds.
Nutrition is a major component of managing digestive disease. Yet people living with Crohn's disease, ulcerative colitis, or indeterminate colitis may not be offered access to help managing their diet.
Dr Selvi Vasudevan, founder of Dr Selvi's Keys to Ease Crohn's, discusses her Crohn's disease journey and how it led her to pursue the role diet and nutrition play in wellness as well as the cultural influence on our food choices. A child of immigrants from southern India to the United States, she is discovering how best to integrate family life, her culture, and her needs as a person with IBD.
Find Dr Selvi on Facebook, Instagram, Twitter, and on DrSelvi.com.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits:
Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.
Theme music, mix, and sound design is by Cooney Studio.
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