What Remission Means to a Teen With Ulcerative Colitis
About IBD
11/21/21
•26m
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Inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis, and indeterminate colitis) is being diagnosed in young people with greater frequency. Research on how to treat pediatric patients, and indeed how to prevent IBD in the first place, is still lacking. What's not in short supply is the strength and resilience shown by pediatric IBD patients and their families. Meet Brooke, a pediatric patient at Connecticut Children's Hospital who credits her dedicated IBD team with her ability to live a life filled with summer camp, dance, and tennis lessons, without the symptoms of ulcerative colitis.
Concepts discussed on this episode include:
- Camp Oasis
- Bradley S. Jerson, PhD, Pediatric Psychologist, who appeared on Episode 77, Episode 78, and Episode 99
- About IBD Podcast Episode 27 – Welcome to Camp Oasis
- Why Clinical Remission Is Not the Goal in IBD
- Avoiding Dehydration
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
Transcript and more information available at: https://bit.ly/AIBD105
Previous Episode
Living With Ulcerative Colitis as an Air Force Pilot
November 7, 2021
•28m
Did you know that being diagnosed with ulcerative colitis or Crohn's disease is a disqualifying condition to serve in the United States military? However, it seems that it's not always an automatic reason for discharge. Lt Colonel Joshua Nelson was diagnosed with ulcerative colitis and needed to have ileostomy surgery. It cast into question his future as a pilot in the Air Force Reserve. Learn his story of how he worked with his medical team in order to keep doing the job he loves, his advice for others like him, and tips on flying that any ostomate can use.
Concepts discussed on this episode include:
- Types of Ulcerative Colitis (UC)
- Pseudopolyps in IBD
- Cryptosporidium Infection
- How to Prepare Yourself for Ileostomy Surgery
- Ulcerative Colitis Surgery
- Do Men Become Impotent After Ostomy Surgery?
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
Next Episode
Every Kid We Take Care of, We Become Part of Their Family
December 6, 2021
•18m
How is IBD different in kids than it is in adults? When should kids be transitioned from pediatric to adult care? What's next for IBD treatments? My guest is Dr Jeffrey Hyams, the head of the Division of Digestive Diseases, Hepatology and Nutrition at Connecticut Children's, and a Professor of Pediatrics at the University of Connecticut School of Medicine. He provides a historical perspective on the treatment of IBD and is able to highlight how therapies have advanced over the last 30 years. He also gives some ideas about what's on the horizon for IBD treatments and what gives him hope for the future.
Concepts discussed on this episode include:
- How IBD Affects Growth in Kids and Teens
- Managing Ulcerative Colitis in Children
- Bradley S. Jerson, PhD, Pediatric Psychologist, who appeared on Episode 77, Episode 78, and Episode 99
- Comparing 6 Biologic Drugs Used to Treat IBD
Find a transcript and more at: https://bit.ly/AIBD106
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
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