Tips on Getting An Infusion During the Pandemic
About IBD
04/01/20
•20m
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We're living through an usual time and people living with Crohn's disease or ulcerative colitis have many questions about how the pandemic may affect them. IBD experts agree that it's important to continue receiving medications during this time to avoid a flare-up. That might mean traveling to an infusion center, hospital, or doctor's office for treatment. Julie Kennedy of The Semicolon Girl recounts her experience in receiving her infusion of her Crohn's disease medication in the era of COVID-19, including how the procedure was different, and gives her tips on how to make the process go as smoothly as possible.
- People with IBD are not at a greater risk of being infected with the novel coronavirus
- Having IBD does not mean a person is immunosuppressed
- People who have had a colectomy and who live with an ostomy or a j-pouch are also not considered immunosuppressed
- Experts are advising that people with IBD should stay on their medications
Find Julie Kennedy on Facebook, Instagram, Twitter, and on her web site, The Sick Adventures of a Semi Colon Girl. Read her blog post about her infusion, Adventures in Pandemics.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
Previous Episode
I Just Needed Something to Change
March 24, 2020
•29m
This is the second episode of my series talking to people who live with a permanent ostomy and exploring why they share their stories publicly and what it means to the ostomy community. I connected with Austin Powers on Twitter where he goes by Ostomy Guy. He has a podcast of the same name where he interviews people who live with an ostomy or who have other serious medical conditions. His path to becoming public about his ostomy started unexpectedly when he sat down to write about his disease journey. What started as a vague idea about writing a blog turned into a book, The Ostomy Guy Story: Memoirs of a Bagman, which is available on Amazon. Listen all the way to end to hear one of the many letters Austin receives from his readers, who are inspired by his story.
Find the Ostomy Guy on Facebook, Instagram, Twitter, and on his site, theostomyguy.com. You can also buy his book, The Ostomy Guy Story: Memoirs of a Bagman, on Amazon.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits:
Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
Next Episode
What It's Like to Have IBD and COVID-19
April 13, 2020
•31m
People living with IBD who have suppressed immune systems because of medication are understandably concerned about their risks surrounding the novel coronavirus and COVID-19. Jamie Horrigan, a medical student and founder of "Sweetened By Nature," lives with Crohn's disease and gastroparesis and was diagnosed with COVID-19. She describes her experiences with symptoms, diagnosis, isolation, and recovery. She also gives some insight on why a common complication of coronaviruses, called a cytokine storm, may be an important factor of COVID-19 for people with IBD.
Concepts discussed on this episode:
- Coronavirus (COVID-19) testing: What you should know (UC Davis Health)
- Mount Sinai COVID-19 Plasma Donation
- National COVID-19 Convalescent Plasma Project
- IOIBD Update on COVID19 for Patients with Crohn's Disease and Ulcerative Colitis
- The Coronavirus Patients Betrayed by Their Own Immune Systems (Cytokine Storm)
- Coronavirus and IBD Reporting Database
- IBD-AID Diet (Anti-Inflammatory Diet for IBD)
- The Specific Carbohydrate Diet for IBD
Find Jamie Horrigan on Facebook, Instagram, Twitter, Pinterest, and on her web site Sweetened by Nature.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Sound engineering courtesy Mac Cooney. "About IBD With Amber Tresca" ©Cooney Studio.
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