The Restroom Access Act

About IBD

06/19/22

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30m

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Have you ever been out in public and needed a toilet — but there wasn't one available?

This has happened to everyone who lives with an inflammatory bowel disease (IBD, Crohn's disease or ulcerative colitis), which is why so many of us have "bathroom accident" stories. Needing to use the bathroom is a basic human need, but it's treated like an afterthought. That's where the Restroom Access Act comes into play: a law passed in several states that allows people to request access to a toilet when they live with certain conditions.

There is no such law currently in California. That's hopefully going to change thanks to the efforts of Ashlyn Saltzburg and Kelly Silk. Ashlyn is a teenager living with IBD and Kelly is her mom. Their effort to get a law passed in California is nothing short of heroic. Learn about how they got started on this journey to have the Restroom Access Act passed in California, and how you can help.

More information and a transcript: https://bit.ly/AIBD119

Concepts discussed on this episode:

Athletic Greens AG1: https://athleticgreens.com/ibdpod
How the Restroom Access Act Helps Those With IBD: https://www.verywellhealth.com/the-restroom-access-act-1942432
California Assembly Bill 1632: https://legiscan.com/CA/bill/AB1632/2021
Akilah Weber, Assmblymember, District 79: https://a79.asmdc.org/2021-2022-legislation
Shervin Rabizadeh, MD, MBA: https://bio.cedars-sinai.org/rabizadehsx/index.html

Find Amber J Tresca at:

AboutIBD.com: http://aboutibd.com/
Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Facebook: https://www.facebook.com/aboutIBD
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits:

Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney
Theme music, IBD Dance Party, is from ©Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single

Previous Episode

Cannabis and IBD

June 6, 2022

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48m

There are significant unmet needs for IBD patients that include pain control, sleep disturbances, anxiety, and depression. Some patients turn to medical cannabis for these symptoms. But is that a good idea, does it work, and what should patients and their doctors know about medical cannabis? To answer these questions and more, Amber talks to cannabis and IBD expert Dr Jami Kinnucan, who is a Senior Associate Consultant in the Section of Gastroenterology and Hepatology at the Mayo Clinic in Jacksonville, Florida.

Get lots more information and a transcript at https://bit.ly/AIBD118

Find Jami A. Kinnucan, MD at:

Mayo Clinic: https://www.mayoclinic.org/biographies/kinnucan-jami-a-m-d/bio-20527092
Twitter: https://twitter.com/ibdgijami
Facebook: https://www.facebook.com/ibdgijami

Find Amber J Tresca at:

AboutIBD.com: http://aboutibd.com
Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Facebook: https://www.facebook.com/aboutIBD
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Credits:

Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney
Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single

Next Episode

Don't Google Your Symptoms With CJ Papuro

June 27, 2022

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32m

There aren't as many men who are vocal in the inflammatory bowel disease (IBD) space as there are women. Crohn's disease and ulcerative colitis affect men as often as they do women, but fewer men seem comfortable being public about their disease. That's why Carlos "CJ" Cabrera, who also goes by CJ Papuro, entered the IBD community after his diagnosis of Crohn's. He gives an overview of how difficult it was to be diagnosed as a US veteran using the Veterans Health Administration, his struggles with finding his way with nutrition, the ways in which IBD has affected him as a man, and his advice for other men. Concepts discussed on this episode include:

Athletic Greens — AG1: https://athleticgreens.com/ibdpod
Fragmented Care and IBD: Outcomes in U.S. Veterans: https://ihpi.umich.edu/news/fragmented-care-and-ibd-outcomes-us-veterans
The Incidence and Prevalence of Inflammatory Bowel Disease Among U.S. Veterans: A National Cohort Study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3972034/
Maltodextrin, Modern Stressor of the Intestinal Environment: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6409436/
How IBD Affects Fertility in Men: https://www.verywellhealth.com/how-ibd-affects-fertility-in-men-4125878
How to Recognize and Diagnose Crohn's Disease in Men: https://www.verywellhealth.com/crohns-symptoms-male-5215367
Arthritis and Inflammatory Bowel Disease: https://www.verywellhealth.com/arthritis-and-inflammatory-bowel-disease-1941772
Should You Exercise If You Have IBD?: https://www.verywellhealth.com/exercising-with-ibd-4582068

Find CJ Papuro at: Instagram: https://www.instagram.com/papuro Instagram: https://www.instagram.com/papurosmokes Instagram: https://www.instagram.com/chill.ghost YouTube: https://www.youtube.com/c/Papuro Find Amber J Tresca at AboutIBD.com: http://aboutibd.com/ Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Facebook: https://www.facebook.com/aboutIBD Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single Episode transcript and more information at: https:/bit.ly/AIBD120

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