
The Powerful Impact of the IBD Community Featuring Katie Neu
About IBD
05/19/26
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Episode transcript and more information at: https://bit.ly/AIBD202
Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical. Chapters- 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease.
- 01:25 — Amber and Katie discuss the IBD Social Circle, a community for patients, caregivers, and healthcare professionals.
- 04:25 — The conversation turns to the experience of "faking being well" to manage social and professional expectations with an invisible illness.
- 10:17 — Katie shares her experiences with the stigma surrounding IBD, from high school and college to the workplace.
- 13:59 — The discussion focuses on the significant barriers to maintaining a career while living with IBD, including needing accommodations.
- 23:20 — Amber and Katie discuss the impact of IBD on body image, dating, and intimate relationships.
- 31:26 — The hosts talk about why people hesitate to join support groups and the mental health benefits of finding community.
- 37:08 — Katie shares where listeners can find her online, including her Instagram and Substack, to connect and learn more.
The IBD Social Circle White Paper: The power of community in inflammatory bowel disease
Find Katie Neu of Badass With a Bad Ass at:
- Instagram: @badass.w.a.bad.ass
- LinkedIn: @badasswithabadass
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- Threads: @about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Previous Episode
After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five Layers of Being," the toxicity of "pushing through," and how she is building community for the next generation of IBD patients.
Episode transcript and more information at: https://bit.ly/AIBD201
Key Chapters & Timestamps:
- [00:00:00] – Welcome to About IBD with Amber Tresca
- [00:04:40] – Diagnosis in the late 90s: Life as a teen with Crohn's
- [00:12:35] – The 2017 Crisis: Three surgeries and a temporary ostomy
- [00:19:40] – The Barn Door Moment: Finding safety in a yoga studio
- [00:23:00] – Healing the Next Generation: Camp Oasis and teen advocacy
- [00:30:30] – Intro to the Pancha Maya Kosha (The 5 Layers of Being)
- [00:32:15] – Layer 1: Annamaya Kosha (The Physical Body)
- [00:34:10] – Layer 2: Pranamaya Kosha (The Energy/Breath Body)
- [00:36:45] – Layer 3: Manomaya Kosha (The Mental/Emotional Body)
- [00:39:50] – Layer 4: Vijnanamaya Kosha (The Wisdom/Witness Body)
- [00:42:30] – Layer 5: Anandamaya Kosha (The Bliss/True Nature Body)
- [00:52:00] – Why "Pushing Through" is a toxic practice for chronic illness
- [01:03:00] – Girls with Guts and the "Om My Guts" community
What you'll learn:
- Why the "pushing through" mentality can exacerbate IBD and how to shift toward acceptance.
- Bari's journey from a high-stress NYC marketing career to becoming a yoga instructor.
- The profound impact of the Pancha Maya Kosha (Five Layers of Being) on managing chronic pain and anxiety.
- How a devastating flare led Bari to overhaul her life and work towards remission.
- The unique benefits of clinical yoga therapy for those with IBD.
- The importance of community through organizations like Girls with Guts and the Crohn's & Colitis Foundation.
Resources mentioned in this episode:
- Team Om My Guts
- Bari Gratton Take Steps
- Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation
Find Girls With Guts at:
- Facebook: @IBDgirls
- Web: https://girlswithguts.org/
- LinkedIn: @ibdgirls
- Instagram: @ibdgirls
- Annual Retreat: October 23 - October 26
Find the Crohn's & Colitis Foundation Los Angeles/Orange County Chapter at:
- Web: Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation
- Instagram: @crohnscolitisfoundationla_oc
- Facebook: @ccflaoc
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Instagram: @about_IBD
- YouTube: @AboutIBD
- Threads: @about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Next Episode
- 00:04 — Introduction to Sarah McGovern
- 02:16 — Sarah's Ulcerative Colitis Journey
- 04:18 — Medication-Induced Pancreatitis
- 09:03 — Planning Travel with IBD
- 14:23 — Packing Tips for IBD Travelers
- 20:39 — Managing Food Restrictions While Traveling
- 25:38 — The Value of a Travel Advisor
- 33:00 — Traveling to Disney with IBD
- 37:03 — Disney's Disability Access Service
- 43:46 — Travel Hacks
- 48:16 — Essential Travel Programs
- 55:07 — Where to Find Sarah Online
Resources:
- IBD Specific Travel Information: https://www.ibdpassport.com
- Delta SkyMiles® Gold American Express Card: https://americanexpress.com/en-us/referral/delta-skymiles-gold-american-express-card?ref=AMBERTxPsU&xl=cp01
- Foldie Bag: https://amzn.to/4uUkk85
- Packing Cubes: https://amzn.to/4euki0U
Find Sarah McGovern at:
- Instagram: @halcyontravelco
- Facebook:@halcyontravelco
- LinkedIn: @halcyontravelco
- Website: https://halcyontravel.co
- Sarah's Personal Instagram: @sarahmcgovern99
- AboutIBD.com: About IBD
- Verywell: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- Threads: @about_IBD
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- Web: Cooney Studio
- YouTube: @MacCooneyComposer
- Theme music, IBD Dance Party, is from ©Cooney Studio.
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