The Girl That Was Missing
About IBD
10/26/20
•31m
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Inflammatory bowel disease (IBD) affects more than the digestive system. Crohn's disease or ulcerative colitis can also affect the eyes, joints, and skin. Jordan Ditty was diagnosed with IBD as a child, though her diagnosis floated between Crohn's and ulcerative colitis and she had j-pouch surgery due to a colonic perforation. Recently, she had her j-pouch removed and a permanent ileostomy placed. Surgery gave her with a better quality of life but also a new diagnosis of a skin condition related to IBD, called pyoderma gangrenosum. Learn how Jordan remains hopeful through her long journey with IBD and a host of complications.
Concepts discussed in this episode:
- The Differences Between an Ileostomy and a J-Pouch
- Fistula Types, Diagnosis, Treatment, and Prognosis
- How to Prepare Yourself for Ileostomy Surgery
- Mouth Ulcers (Aphthous Stomatitis)
- Overview of J-Pouch Surgery
- Pouchitis After IPAA (J-Pouch) Surgery
- Proctectomy Surgery for Inflammatory Bowel Disease ("Barbie" butt or "Ken" butt surgery)
- Pyoderma Gangrenosum as a Potential Complication of IBD
Find Jordan Ditty on Instagram.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
Previous Episode
Promo: PSC Mami
September 21, 2020
•1m
I'm taking some time off from producing new episodes of About IBD. But I don't want to leave you without great Crohn's disease and ulcerative colitis content for your ears. That's why I'm sharing another podcast with you, called PSC Mami. PSC stands for primary sclerosing cholangitis, and it's a liver condition that is related to IBD, and ulcerative colitis in particular.
PSC Mami brings you stories at the intersection of PSC and parenthood. You can find PSC Mami in any podcast app as well as on Facebook, Instagram, and Twitter. The host of PSC Mami is Monika Aldarondo, who talks to parents about their perspective on life with IBD and PSC. Subscribe to PSC Mami in your favorite podcast app, including Apple Podcasts, Google Podcasts, Stitcher, and Soundcloud.
Find PSC Mami on her web site, Facebook, Instagram, and Twitter.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Mix and sound design for About IBD is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
Next Episode
Am I Forgiven?
November 16, 2020
•33m
Do you worry that inflammatory bowel disease (IBD) will get in the way of finding a romantic partner? Crohn's disease or ulcerative colitis can make dating challenging but they can also simplify it. It becomes clear pretty quickly if a potential partner is going to struggle to cope with chronic illness. This episode focuses on communication, as Amber and her husband, Mike, discuss how he reacted to his first introduction to ulcerative colitis and why it's important to check in with your partner before discussing IBD outside of the relationship. After more than 20 years, they finally put an incident of miscommunication to bed, and Mike gives his tips on being a supportive partner.
Concepts discussed in this episode:
- Advice for Partners of People With IBD
- How to Create Your IBD Elevator Speech
- The Differences Between an Ileostomy and a J-Pouch
- How to Prepare Yourself for Ileostomy Surgery
- Overview of J-Pouch Surgery
- What You Can Say to Your Friend With IBD
- Pregnancy and Inflammatory Bowel Disease
- Living With Prednisone
Find Michael Tresca on Facebook, Twitter, and Patreon.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Find IBDMoms on IBDMoms.org, Facebook, Twitter, and Instagram.
Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
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