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About IBD - Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton
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Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton

About IBD

09/17/25

53m

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Amber interviews artist Daniel Leighton, who shares his journey living with Crohn's disease from childhood. Daniel tells us how he didn't think of himself as an artist, but painting became a vital tool for expressing emotions and coping with complex PTSD related to chronic illness. He offers some advice for those intimidated by starting a journey into creativity and describes how art validates the experiences of people with chronic illness. Daniel's artwork, inspired by his medical journey, helps others with IBD feel seen and less alone, highlighting the role of art in emotional healing and community connection.

This episode contains a discussion of medical trauma and complex PTSD (post-traumatic stress disorder), so please take care when listening. Check the show notes for a description and time stamps, in case you want to skip certain sections.

Episode transcript and more information at: https://bit.ly/AIBD185

Chapters:
  • 00:01 Intro & Content Warning
  • 2:40 Daniel's IBD Journey & Surgeries
  • 5:15 Early J-Pouch Surgery
  • 6:24 Discovering Art as an Outlet
  • 11:24 Art for Processing Trauma
  • 15:21 Getting Started with Art
  • 17:23 Art, PTSD & Chronic Illness
  • 18:43 Connecting to Cure
  • 19:57 Evolution of Artwork
  • 21:30 Depicting Pain in Art
  • 22:39 Trying New Things
  • 23:44 Specific Artworks & Meanings
  • 29:24 First Surgery & Trauma
  • 33:12 Evolving Trauma Over Time
  • 34:22 Art as a Bridge
  • 38:08 Medical Restraint Trauma
  • 40:52 Power of Not Feeling Alone
  • 42:15 Lessons Learned the Hard Way
  • 43:56 "Here Comes the Flood"
  • 46:49 Self-Compassion & Healing Timelines
  • 47:55 Ballroom Dancing & New Experiences
  • 50:38 Where to Find Daniel's Art
  • 51:44 Closing & Credits
Topics discussed on this episode:
  • The role of art as an outlet for expressing emotions related to living with inflammatory bowel disease (IBD).
  • Personal experiences of living with Crohn's disease, including diagnosis and surgeries.
  • The therapeutic benefits of using art to process trauma and cope with chronic illness.
  • Practical advice for using art as a form of emotional expression, regardless of artistic skill level.
  • The importance of self-compassion and recognizing individual healing timelines.
  • The impact of trauma on emotional expression and the need for safe spaces to feel emotions.
  • The evolution of personal artwork and its connection to experiences with IBD.
  • Encouragement to embrace intimidating activities as a means of personal growth and healing.
  • The significance of creating visual representations of emotions, such as "pain charts."
  • The importance of community and connection in the journey of living with chronic illness.
Links to information mentioned in this episode:

Find Daniel Leighton at:

Find Amber J Tresca at:

  • AboutIBD.com: About IBD
  • Verywell Health: ...

Previous Episode

Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for people touched by IBD. Online and in-person groups offer support and serve as platforms to share practical tips and counter misinformation. Aaron points out that it's important to find a balance between advocacy, health, and personal life when offering support to others. Both emphasize the value of authenticity and learning from mistakes. The conversation stresses the importance of caring for mental health, the power of connection, and staying true to one's own reasons for taking part in community. Topics discussed on this episode:
  • Importance of community for people living with inflammatory bowel disease (IBD)
  • Challenges and rewards of sharing disease experiences online
  • Navigating negative comments and misinformation in online communities
  • Strategies for engaging with IBD communities and providing support
  • Balancing community involvement with personal health and family life
  • Mental health considerations when participating in online discussions
  • Importance of authenticity and passion in advocacy work
  • Addressing misinformation and promoting accurate health information within the community
Chapters:
  • 0:05 Intro & Sponsor
  • 1:23 Aaron's Background & Group Origin
  • 5:30 Power of Community
  • 8:08 Support in Community
  • 11:44 Getting Involved in IBD Communities
  • 15:16 Before Sharing Online
  • 16:15 Motivation & Authenticity
  • 19:10 Combating Misinformation
  • 25:20 Boundaries & Balance
  • 31:52 Mental Health & Selective Sharing
  • 34:55 Handling Criticism & Mistakes
  • 38:11 Referring Out & Collaboration
  • 39:18 Responding to Criticism
  • 40:13 Aaron's Socials & Closing
  • 41:53 Outro & Credits

Find Aaron Blocker at:

Find Amber J Tresca at:

Find Mac Cooney (mix, sound design, and theme music) at:

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Next Episode

Every person living with inflammatory bowel disease (IBD) can help change public policy by sharing their story and participating in advocacy events, such as visiting legislators in Washington, D.C. Amber talks to Kelly E. Dwyer, who teaches us how to prepare an elevator speech and gives us practical tips for Hill Day logistics, working within teams, staying emotionally resilient, and following up with staffers. Advocacy is for everyone, and persistence and collaboration can lead to real policy changes to benefit the IBD and chronic illness communities. By the end of the episode, you'll have the real resources you can use to do this work as a patient advocate both locally and nationally. This episode is sponsored by Connecting to Cure. Transcript and more information: https://bit.ly/AIBD186 Chapters:
  • 00:05 Introduction and Guest Background
  • 01:23 The Role and Nature of Patient Advocacy
  • 02:37 The Long Game of Advocacy: Successes and Challenges
  • 04:37 Advocacy vs. Activism and Personal Motivation
  • 06:05 The Importance of Patient Stories in Advocacy
  • 06:52 Crafting and Delivering Your Elevator Speech
  • 11:46 Managing Emotions and Practicing Your Story
  • 15:42 Preparing for Advocacy Day: Research and Teamwork
  • 18:07 Training and Building Confidence for Hill Visits
  • 20:58 Coordinating with Your Advocacy Team
  • 22:38 Practical Logistics: What to Wear and Security
  • 24:42 Navigating Capitol Hill: Accessibility and Facilities
  • 29:26 Managing the Day: Scheduling and Flexibility
  • 32:17 During the Meeting: Structure and Communication
  • 36:04 Group Dynamics and Respectful Storytelling
  • 40:29 Building Relationships and Following Up
  • 42:12 How to Get Involved with Advocacy Groups
  • 44:42 Financial Considerations and Accessibility
  • 45:17 Encouragement and Closing Thoughts on Advocacy
  • 47:12 Lessons Learned the Hard Way
  • 50:33 Closing Remarks and Gratitude
  • 51:22 Outro and Credits
Topics on this episode:
  • Overview of inflammatory bowel disease (IBD), including Crohn's disease and ulcerative colitis.
  • Personal experiences of living with IBD and the impact on daily life.
  • The role of patient advocacy in improving healthcare policies and patient rights.
  • Challenges faced by patients regarding insurance barriers and treatment access.
  • Importance of sharing personal stories with legislators to influence policy change.
  • Distinction between activism and advocacy in the context of healthcare.
  • Strategies for effective communication and preparation for advocacy efforts.
  • The significance of teamwork and collaboration in advocacy initiatives.
  • Resources and organizations that support IBD advocacy and patient education.
  • Emotional aspects of sharing health experiences and the importance of building relationships with legislative staff.
Find Kelly E. Dwyer at: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at: These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

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