My Life Would Never Be the Same
About IBD
02/25/20
•30m
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Finding meaning in an illness journey can be a catalyst for purpose and hope. Dr Selvi Vasudevan endured severe Crohn's disease that resulted in several surgeries and a relentless series of complications. She was on her chosen path when the disease stole her aspirations and left her without direction. A recommitment to herself and her own healing journey helped her find her purpose again as a healer and prompted her to found Cooking With Crohn's in order to share what she's learned with the IBD community.
Information discussed in this episode includes erythrocyte sedimentation rate (sed rate), normal white blood cell (WBC) count, bowel perforation, wound closing by secondary intention, and ileostomy surgery.
Find Dr Selvi on Facebook, Instagram, Twitter, and on her web site, DrSelvi.com.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
Previous Episode
Health Insurance, Accommodations, and IBD at Work
February 11, 2020
•28m
People who live with Crohn's disease or ulcerative colitis have more to consider when it comes to the workplace. The cost of inflammatory bowel disease (IBD) means that a comprehensive insurance plan is a must, which may limit job choices. A flare-up or complication that results in absences can lead to poor performance reviews or difficulties with supervisors or co-workers. How can people with IBD cope? Three women who live with IBD, Megan Starshak, Mary Elizabeth Ulliman, and Tina Aswani Omprakash, tell their stories about missing work, being underinsured, and changing jobs while managing IBD.
Information discussed in this episode includes Clostridium difficile (C diff), pouchitis, Crohn's and Colitis Foundation Help Center, IBD and the Americans With Disabilities Act, The Family and Medical Leave Act, and Financial Help for People with IBD.
Select pharmaceutical company assistance programs:
- Cimzia (certolizumab
- Entyvio (vedolizumab
- Humira (adalimumab
- Inflectra (infliximab biosimilar
- Remicade (infliximab)
- Renflexis (Infliximab biosimilar
- Simponi (goliumumab
- Stelara (ustekinumab
- Tysabri (natalizumab
- Xeljanz (tofacitinib
Find Megan Starshak on MeganStarshak.com, Twitter, and Instagram.
Find Tina Aswani Omprakash on Own Your Crohn's, Facebook, Twitter, and Instagram.
Find Mary Elizabeth Ulliman on Instagram.
Find The Great Bowel Movement on Facebook, Twitter, and Instagram.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits:
Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
Next Episode
I'm Going to Make the Best of This
March 17, 2020
•24m
Ostomy surgery is a life-saving procedure that can improve quality of life, but that doesn't mean it is always easy to accept. Stephanie Hughes founded The Stolen Colon after having surgery to place an ileostomy to treat her Crohn's disease. She's an ostomate, but she's also a writer, a woman, a wife, a mother, and a resource for people in the IBD and the ostomy community. She shares her journey through Crohn's disease and acceptance of her ostomy with me, including what her kids think of her stoma, how she manages issues around privacy, and what happened when a person who didn't know she had an ileostomy told her that ostomies were smelly. Listen all the way to the end to hear how Stephanie's advocacy in the ostomy community touched one family and gave them hope.
Information for topics discussed in this episode includes protectomy surgery, colectomy surgery, ileostomy surgery, changing an ostomy appliance, Enterostomal Therapy (ET) nurses, ostomy tips, and what's normal with a stoma.
Find Stephanie Hughes on Facebook, Instagram, YouTube, Twitter, and on her blog, The Stolen Colon.
Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.
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