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About IBD - How Propel a Cure is Transforming Crohn's Disease Research
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How Propel a Cure is Transforming Crohn's Disease Research

About IBD

08/05/25

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39m

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Episode transcript and more information at: https://bit.ly/AIBD180 Grassroots organizations are an important part of the IBD landscape, helping fill in the many gaps in our underserved community. Amber talks with Angela Clark, president and CEO of Propel a Cure, a grassroots nonprofit that funds research projects looking for the causes of Crohn's disease. They discuss the challenges of finding cures for IBD and the importance of supporting innovative, early-stage research. Angela explains their grant selection process, highlights current research they fund, and shares how the organization communicates complex science to the IBD community. Topics in this episode include:
  • Origins and mission of Propel a Cure, a nonprofit organization focused on Crohn's disease research.
  • Angela Clark's personal connection to Crohn's disease and her role in Propel a Cure.
  • The grassroots nature of Propel a Cure and its all-volunteer structure.
  • Challenges and rewards of running a nonprofit organization dedicated to IBD research.
  • Funding strategies for innovative research projects related to Crohn's disease.
  • Importance of raising awareness and combating misconceptions about Crohn's disease.
  • Overview of current research projects funded by Propel a Cure and their scientific approaches.
  • The role of a scientific advisory board in evaluating research proposals.
  • Communication strategies for making complex scientific research accessible to the IBD community.
  • Future goals for expanding funding capacity and building partnerships within the IBD space.
More information: Find Propel a Cure at: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at:

Previous Episode

undefined - From Privacy to Advocacy: Balancing Faith and Chronic Illness Featuring Hindy (Tauber) Klein
From Privacy to Advocacy: Balancing Faith and Chronic Illness Featuring Hindy (Tauber) Klein

July 22, 2025

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30m

Amber speaks with Hindy Klein, a member of the Orthodox Jewish community living with Crohn's colitis. Hindy shares how she manages IBD while observing Jewish laws, discussing challenges with diet, fasting, and hospital care during Shabbat and holidays. She also talks about overcoming stigma, the importance of community support, and how her faith helps her cope. The episode highlights the need for cultural sensitivity in healthcare and the value of sharing personal stories to support others with chronic illness. Episode transcript and more information at: https://bit.ly/AIBD179 ✨ Intersection of inflammatory bowel disease (IBD) and religious faith ✨ Personal experiences of managing Crohn's colitis within the Orthodox Jewish community ✨ Challenges related to diet, fasting, and hospital care during religious observances ✨ Cultural tendencies towards privacy regarding chronic illness in the Jewish community ✨ Importance of community support and mutual aid in times of health crises ✨ Navigating healthcare communication with providers unfamiliar with religious customs ✨ The role of spirituality and trust in G-d as coping mechanisms for chronic illness ✨ Advocacy and openness about health experiences to combat stigma ✨ Balancing personal health needs with religious obligations ✨ The impact of social media in connecting with others and finding support within the IBD community Topics discussed in this episode: Find Hindy (Tauber) Klein at: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at: These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Next Episode

undefined - How Storytelling Fosters Compassion for Kids with Chronic Illness
How Storytelling Fosters Compassion for Kids with Chronic Illness

August 19, 2025

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35m

A children's book leads to this conversation, which bridges the worlds of chronic illness, creativity, and connection. I talk with MB (Britt) Mooney, author of "The Mouse Who Couldn't Eat Cheese," a children's book inspired by a young woman named Alex who lived with severe Crohn's disease. MB, a science fiction and fantasy author, stepped outside his usual genre to create a story that helps kids and families understand invisible illnesses and the power of friendship. You'll hear behind-the-scenes insight on MB's creative process, the lessons learned from working with Alex's family, and the message he hopes every reader takes away—whether they live with inflammatory bowel disease or not. Episode transcript and more information at: https://bit.ly/AIBD181 Topics in this episode include: 🦉 Representation of chronic illness, specifically Crohn's disease, in children's literature. 🦉 The importance of empathy and understanding in friendships, especially for children with chronic illnesses. 🦉 The challenges faced by children with Crohn's disease and the need for social inclusion. 🦉 The creative process involved in writing a children's book and the balance required in storytelling. 🦉 The role of creativity in problem-solving and fostering community. 🦉 The significance of raising awareness about chronic illnesses through literature. 🦉 The broader themes of connection, support, and validation for children facing health challenges. Find MB Mooney at: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at:

These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

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