Growing Up IBD with Brian Greenberg

About IBD

11/02/17

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31m

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Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn's disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself.

2:15: Brian spent a lot of time in detention as a kid!

3:15: The hardest part of going to school with IBD.

5:00: Brian's first resection: at 21.

7:00: Deciding to get an ostomy and what that meant for the future.

9:00: How an ostomy and a Ken butt made life better.

11:00: The misunderstandings that can happen when your peers don't understand about IBD.

14:00: Why do people not just ask about why a person may appear sick?

16:00: How Brian manages to stay active with Crohn's disease.

16:30: How being active can help with the mental aspects of coping with IBD.

17:34: Why distractions can actually be beneficial at times.

19:00: One of the things Brian has done that maybe is a little risky. But super fun.

19:40: How Brian managed an aggressive medication schedule in the 90s.

20:20: Brian's experience in transitioning from parents managing everything IBD to him managing it himself.

Find Brian Greenberg at:

Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU
Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/
Facebook: https://www.facebook.com/ChronicallyBetterYou/

Find Intense Intestines Foundation at:

We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2
Web: http://www.intenseintestines.org/
Facebook: https://www.facebook.com/IntenseIntestines/
Twitter: https://twitter.com/NtenseNtestines
Instagram: https://www.instagram.com/intense_intestines/

Find Amber J Tresca at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutibd
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Intro Music: Badass - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: The Lounge - Bensound.com - www.bensound.com/royalty-free-music

Previous Episode

Don't Let IBD Ruin Your Day

October 17, 2017

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Did you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It’s a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you’re struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!).

2:53: IBD is not a pooping disease!

3:34: 8AM classes — everyone else hates them ‘cause they’re hung over. You hate them because IBD.

4:28: Contact the student services office at your university about getting accommodations.

5:19: IBD is covered under the Americans With Disabilities Act, which means that you can ask for reasonable accommodations.

6:23: Yeah, I’m gonna come down on coffee and how it affects your digestive tract.

8:18: Not eating/drinking in the morning: how that can be good or bad depending on circumstances.

10:13: Why a lack of appetite can work against you during an IBD flare-up.

12:00: What should come with you when you leave the house?

16:32: Making your IBD emergency kit.

22:40: Vegan Ostomy coping with a leaking appliance in his car at Canada’s Wonderland (I thought he did a full change but actually he was able to change the bag) https://www.youtube.com/watch?v=55jpoNZCryw

23:19: The mental aspect of dealing with bathroom accidents is probably the most difficult one to overcome.

Resources:

#AboutIBDPodcast on stress relief with Dr Tiffany Taft: https://soundcloud.com/amber-j-tresca/episode-11-final-mixed
What To Do In Case Of Bathroom Accidents: https://www.verywell.com/what-to-do-in-case-of-bathroom-accidents-1942902
Fecal Incontinence And IBD: https://www.verywell.com/fecal-incontinence-and-ibd-1943008
The Restroom Access Act: https://www.verywell.com/the-restroom-access-act-1942432
IBD Worst-Case Scenario Handbook: https://www.verywell.com/ibd-worst-case-scenario-handbook-1942892
Is Caffeine Bad For Your IBD? https://www.verywell.com/is-caffeine-bad-for-your-ibd-1942678

Find Amber J Tresca at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutibd/
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Intro Music: Acoustic Breeze - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Sweet - Bensound.com - www.bensound.com/royalty-free-music

Next Episode

We Are All Capable of More Than We Think With Brian Greenberg

December 3, 2017

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42m

What are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn's disease and an ostomy through careful planning and setting goals. 2:35: Why sitting still actually makes Brian feel worse. 3:18: Why a routine is important 4:33: What's a Half Ironman? 6:41: How to set goals, no matter if they're big or small 10:20: Why a schedule is important 13:05: On being a model patient 13:57: What happens when you miss a training day? 18:30: What Brian thinks when he looks at his training schedule or during a race 20:02: A nightly routine that helps reduce stress 24:19: The biggest motivating factor in Brian's life 27:19: Shout out to our partners for the help 29:49: Why it's best to do you and to not compare to others Find Brian Greenberg at: