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About IBD - About IBD Preview - Crohn's Disease and Ulcerative Colitis
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About IBD Preview - Crohn's Disease and Ulcerative Colitis

About IBD

08/09/20

1m

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While everyone who lives with inflammatory bowel disease (Crohn's disease, ulcerative colitis, indeterminate colitis), or IBD, has their own story, there are major themes. Finding someone whose story is similar to yours is both validating and empowering. This is why Amber Tresca, who lives with ulcerative colitis and a j-pouch, developed the About IBD Podcast. IBD is not only isolating but it also affects every aspect of the lives of those who live with these diseases. It touches relationships, finances, and careers. On About IBD, Amber talks to caregivers and people living with IBD to get their stories so that they can share what they've learned from their journey. She also talks to healthcare providers and other experts to get their perspective on a wide variety of topics including research about IBD, improving relationships with physicians, becoming a critical thinker, and how to get involved with healthcare activism. Amber wants to give people touched by IBD the information they need to live a better life, as well as feel less alone while navigating the ups and downs of the patient journey. Subscribe to About IBD on Apple Podcasts, Google Podcasts, or your favorite podcast app. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.

Previous Episode

What's in your microbiome and how does it interact with your IBD? The bacteria that's in the gut of someone that lives with IBD is different from the bacteria in the the gut of someone that doesn't have IBD. This is a major area of study because it may help researchers not only in developing new treatments but also in better understanding IBD. That's why I asked Arielle Radin, Director of Clinical Research for Gali Health, to talk to me about the Footprints Program. The Footprints Program is an ambitious research project that is going to sequence poop and saliva from IBD patients. It's being used in conjunction with the Gali Health app, which is made especially for IBD patients to track their symptoms and connect with other people who live with Crohn's disease or ulcerative colitis. Participants in the Footprints Program will get access to some information about their microbiome. They can then look at the changes over time and see if there are any trends with the symptoms that are kept in the Gali app. It sounds pretty amazing, which is why I signed up for the program. Arielle Radin, who answers my questions about Gali Health and the Footprints Program, and on a personal note, tells us about getting married during the pandemic.

Concepts discussed in this episode:

Find Gali Health at GaliHealth.com, Facebook, Twitter, LinkedIn, YouTube, and Instagram.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.

Next Episode

Back to school will be quite different for families across the United States and the world this year. There aren't many answers to be had to our questions, yet we must make decisions with the best information that we have at this time. I speak with Dr Brad Jerson, a Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children's and an Assistant Professor of Pediatrics at the University of Connecticut School of Medicine about how we can prepare our kids, and ourselves, for the school year. We discuss the behaviors we can model for our children, how we can talk to young kids about mask wearing, and how to engage kids of all ages in conversation about their fears and anxieties during this time.

Concepts discussed in this episode:

Find Dr Brad Jerson on Twitter and at Connecticut Children's.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.

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